Cyst on Pancreas?

Posted by faithann64 @faithann64, Feb 25, 2021

So recently i had a CT Abdomen Pelvis w/ Contrast and they found a cystic structure to arise on the Pancreas . Said it could represent a serous/mucinous neoplasm. Anyone knows what that means ??? Thank You. ( 57 year old male.)

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

I was diagnosed with the same and they said to repeat the MRI yearly

REPLY

Thank you for that. How long ago did this first occur? Any changes since then regarding scans, symptoms, or medication?

I have intermittent fatigue and IBS symptoms. If I stay on a strict low-calorie / fat SIBO diet, exercise, and sleep appropriately, it helps a great deal. I take Peppermint Oil from CVS 20 to 30 minutes before each meal, and occasionally take Gas X. Alternating between being constipated and having overflow leakage still occurs; actual "accidents" are mitigated a great deal if I stick to this regiment, but if I get the stomach flu or even eat something that has a low level of food poisoning, it takes me down for a bit more than others that may have eaten the same food or had the same stmoch flu.

Is this anything like you are experiencing? Thank you!

REPLY
Profile picture for creondave @creondave

Thank you for that. How long ago did this first occur? Any changes since then regarding scans, symptoms, or medication?

I have intermittent fatigue and IBS symptoms. If I stay on a strict low-calorie / fat SIBO diet, exercise, and sleep appropriately, it helps a great deal. I take Peppermint Oil from CVS 20 to 30 minutes before each meal, and occasionally take Gas X. Alternating between being constipated and having overflow leakage still occurs; actual "accidents" are mitigated a great deal if I stick to this regiment, but if I get the stomach flu or even eat something that has a low level of food poisoning, it takes me down for a bit more than others that may have eaten the same food or had the same stmoch flu.

Is this anything like you are experiencing? Thank you!

Jump to this post

I was diagnosed about 7 months ago with MRI and MRCP tests. At the time I was experiencing change in bowel habits,(loose , flat and frequent) low elastase level, weight loss, fatigue, gas, bloating, etc. I was sent to Mayo for diagnosis because all the testing by my GI doc didn't confirm anything except the IPMN and my symptoms continued. I have gotten my appetite back and have regained most of the 10 lbs. I lost (weigh 107 lbs. now. I still have all the other symptoms with increased mid back pain. My doctor here has put me on a low FODMAP diet and will start it tomorrow...don't have high hopes.

Good luck to you

REPLY

@creondave: Just my 2 cents for you to consider with your trusted doctors: I had all the above gastro symptoms for 2 yrs - many drs expressed what they thought was appropriate diagnoses, but IBS, various medication, diet, etc. were NOT the cause of my symptoms. My correct diagnosis came after several CT scans and EUS gut examinations… after that last biopsy of a suspicious nodule hiding near the duodenum bulb at the small intestine junction proved to be NET Carcinoid cancer (my primary tumor).
My gastro symptoms only have diminished since the Oncologist began my Lanreotide 28 day injections to control carcinoid syndrome including diarrhea, gas, bloating & other gastro symptoms.
I want you to get your regular life back - free from the limiting gastro symptoms you deal with everyday. Please stay aware of increasing symptoms and be persistent in your decisions for your best health. My heart hopes this saga will not be your reality. It is human nature for all of us to hope our symptoms disappear and we discount they are warning signs. I wish you excellent health!
Just my 2cents… dbamos1945

REPLY
Profile picture for montanasky @montanasky

I was diagnosed about 7 months ago with MRI and MRCP tests. At the time I was experiencing change in bowel habits,(loose , flat and frequent) low elastase level, weight loss, fatigue, gas, bloating, etc. I was sent to Mayo for diagnosis because all the testing by my GI doc didn't confirm anything except the IPMN and my symptoms continued. I have gotten my appetite back and have regained most of the 10 lbs. I lost (weigh 107 lbs. now. I still have all the other symptoms with increased mid back pain. My doctor here has put me on a low FODMAP diet and will start it tomorrow...don't have high hopes.

Good luck to you

Jump to this post

I felt the same way about the low FODMAP diet, but it did wonders for me. Not a magic bullet, but the change after one week was pretty shocking, I hope it works well for you. Good luck!

REPLY
Profile picture for creondave @creondave

I felt the same way about the low FODMAP diet, but it did wonders for me. Not a magic bullet, but the change after one week was pretty shocking, I hope it works well for you. Good luck!

Jump to this post

@creondave,

I'm glad that you benefited from the low FODMAP diet plan. I had a similar experience. On Connect, we have a discussion group on that topic. Here is the link for anyone who would like more information.
https://connect.mayoclinic.org/discussion/fodmap-eating-plan/

REPLY
Profile picture for dbamos1945 @dbamos1945

@creondave: Just my 2 cents for you to consider with your trusted doctors: I had all the above gastro symptoms for 2 yrs - many drs expressed what they thought was appropriate diagnoses, but IBS, various medication, diet, etc. were NOT the cause of my symptoms. My correct diagnosis came after several CT scans and EUS gut examinations… after that last biopsy of a suspicious nodule hiding near the duodenum bulb at the small intestine junction proved to be NET Carcinoid cancer (my primary tumor).
My gastro symptoms only have diminished since the Oncologist began my Lanreotide 28 day injections to control carcinoid syndrome including diarrhea, gas, bloating & other gastro symptoms.
I want you to get your regular life back - free from the limiting gastro symptoms you deal with everyday. Please stay aware of increasing symptoms and be persistent in your decisions for your best health. My heart hopes this saga will not be your reality. It is human nature for all of us to hope our symptoms disappear and we discount they are warning signs. I wish you excellent health!
Just my 2cents… dbamos1945

Jump to this post

Thank you for the feedback and support. I appreciate it as it is always easy to overlook something. Indeed, we need to be vigilant

It never occurred to me that my symptoms would go away, as testing indicated something bigger was happening. For me, the Creon, low FODMAP diet, and peppermint oil did help to alleviate symptoms significantly, especially with IBS symptoms that disrupted daily activities as well as the embarrassment.

It seems as if the body and the healthcare system are so complex that it is a miracle any progress is made at all, so I am grateful, albeit pessimistic at times.

REPLY
Profile picture for montanasky @montanasky

I was diagnosed about 7 months ago with MRI and MRCP tests. At the time I was experiencing change in bowel habits,(loose , flat and frequent) low elastase level, weight loss, fatigue, gas, bloating, etc. I was sent to Mayo for diagnosis because all the testing by my GI doc didn't confirm anything except the IPMN and my symptoms continued. I have gotten my appetite back and have regained most of the 10 lbs. I lost (weigh 107 lbs. now. I still have all the other symptoms with increased mid back pain. My doctor here has put me on a low FODMAP diet and will start it tomorrow...don't have high hopes.

Good luck to you

Jump to this post

Hello @montanasky

I hope you find the low FODMAP diet helpful. It has made a difference for me and others.

I would enjoy hearing from you after you try the eating plan. Will you post an update?

REPLY
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @montanasky

I hope you find the low FODMAP diet helpful. It has made a difference for me and others.

I would enjoy hearing from you after you try the eating plan. Will you post an update?

Jump to this post

I will post an update after i've been on the fodmap diet for awhile. Thanks for your interest

REPLY
Profile picture for dbamos1945 @dbamos1945

@creondave: Just my 2 cents for you to consider with your trusted doctors: I had all the above gastro symptoms for 2 yrs - many drs expressed what they thought was appropriate diagnoses, but IBS, various medication, diet, etc. were NOT the cause of my symptoms. My correct diagnosis came after several CT scans and EUS gut examinations… after that last biopsy of a suspicious nodule hiding near the duodenum bulb at the small intestine junction proved to be NET Carcinoid cancer (my primary tumor).
My gastro symptoms only have diminished since the Oncologist began my Lanreotide 28 day injections to control carcinoid syndrome including diarrhea, gas, bloating & other gastro symptoms.
I want you to get your regular life back - free from the limiting gastro symptoms you deal with everyday. Please stay aware of increasing symptoms and be persistent in your decisions for your best health. My heart hopes this saga will not be your reality. It is human nature for all of us to hope our symptoms disappear and we discount they are warning signs. I wish you excellent health!
Just my 2cents… dbamos1945

Jump to this post

thank you for your information

REPLY
Please sign in or register to post a reply.