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Anyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (142)Comment receiving replies
Hi @mcconachie Welcome to Connect. I’m sure your mind is racing with questions after having learned that you may have CLL but no explanations forthcoming until a couple of months from now!
There are several members in Connect who have CLL, some newbies such as yourself and others have had this chronic form of Luekemia for many years. It’s generally slowly developing and from my understanding, remains one of the more treatable forms of leukemia.
I found a reply that I made to another member a few months ago. It’s filled with quite a few useful references that you might find helpful. Here’s the link:
https://connect.mayoclinic.org/comment/1277732/
Were you having symptoms that led up to your diagnosis or was this found with routine labs from a physical?
Replies to "Hi @mcconachie Welcome to Connect. I’m sure your mind is racing with questions after having learned..."
@loribmt Hi Lori
I have been in contact with a hematologist for a few years due to blood tests not being normal. No one has actually said I have CLL but I just happened to read it on my clinic notes so I want to prepare myself. I have bouts of tiredness, night sweats and bones which ache and ache. There are times when walking is very difficult because of back issues but recently I have begun to walk again with poles to help me for stability and I breathe through the pain because it is important to do some exercise so I push myself. I also do Chi Chong and Feldenchrist so am not a couch potato! November cannot come soon enough for a proper diagnosis. Due to the situation here in my country, my clinic has been sending my blood results to the hematologist and they have relayed the outcome to me all is well. Now that doctor wants to see me in person. Are there any questions I should ask I feel as if I am missing something?
Connect
Did I have symptoms NO. But approximately 3 years ago at my VET’s physical I was told that my white blood cell count was rather high. After further oncology visits it was confirmed that I had CLL. Since then I have had 2 units of blood and 4 infusions of ribiaux (sp?) and all blood tests since then have been good. All one can do is follow your Doctor’s instructions. She told me I’m ok but also told me once a person has CLL one has it most likely for life. So I am trying and I think successful
in keeping a positive attitude which at times is difficult. I am 77 lived a very full life and just deal with my CLL. My advice/suggestion keep your head up and go on living life.
Butch