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DiscussionSymptoms of non Hodgkin's Lymphoma ?
Blood Cancers & Disorders | Last Active: Sep 17 7:52am | Replies (19)Comment receiving replies
Replies to "Hi, I am so sorry you're going through this. I just in the process. There's a..."
Last November, I fell backwards into my wheelchair & hit screws at L5S1. I went to ER & didn't break them but they gave me some meds & sent me home. Several days later, I had spots all around my waist which turned out to be Shingles. I went to walk in and then PCP. After the Shingles healed, I got weird bruises all around waist, under abdomen, and under breasts, & around upper legs, which PCP said was a fungus. No itching, no pain, but kept getting more spots on breasts & then down the back of my legs to my knees and spots under both arm pits. After 4 months I said I needed to find out what it was and went to my Dermatologist. She took a biopsy, I went on a cruise with 2 of my daughters, but didn't want to show any of my skin. Ugh! It took 3 weeks for results--Non-Hodgkins Lymphoma, Mycosis Fungoides. My doctor at Florida Cancer also did the same labs plus more and got the same result. I was supposed to start light treatment and went 3 times, but they never started it. The last time I was told my case was too complicated and they sent my records to Moffit. My daughter took me to Moffit and they did labs, but while I was there, I was told I was in complete remission since the color of this "rash" wasn't purple and red, but most had turned light brown. How could I be in remission without treatment? My PCP said there are miracles. Othere doctors said going into remission like that can happen. I was told to contact them if I saw a purple/red spot. They repeated the labs I already had twice and on one test they did twice--Flow Cytometry--one was positive and the other was negative. My oncologist is playing a wait and see but told me I must continue with dermatologists, who basically gave up on me. I will see dermatologist in 2 days and see what she says. In the meantime, it's iron infusions, B12 shots, labs and appts, and in November they will do the same testing that's been done 3 times. Hopefully I won't have to have another bone marrow biopsy. Originally, I was seeing oncologist for suspected Multiple Myeloma, not lymphoma. I'm at MGUS, which means I may never get full blown MM, but this is driving me crazy. Tell me what I have & I deal with it--but this unknown--with 2 cancers is driving me nuts, especially since I already have so many other health problems. I'm waiting to get a shoulder replacement surgery, which has been delayed since July 31 because my PCP stopped taking my insurance and no one told me. Sorry for the long way to get to your question, but I would suspect the purple spot on your arm might be the beginning of non-Hodgkins Lymphoma--Mycosis Fungoides--which I may or "may not" have. lol I feel so bad for all of us going through this, but I'm now 79, and at least the knowledge about cancer has grown by leaps and bounds in my lifetime, and friends that died in their teens would have survived now. That gives me hope. I also have a bunch of auto-immune diseases, a pacemaer, had a heart attack and 2 strokes, 30+ surgeries, etc. I could go on and on with health problems, but for some reason, I'm still here. I thank God every day for still being here, even in so much pain because I still enjoy life. I had 2 grandsons and 1 great grandson here playing in the pool yesterday and it was so nice. This morning my daughter told me to look at the beautiful white heron and another bird that looks like a chicken. Later, we had a hawk sitting on the pool cover. We don't have a lot of money, but we recently moved to a house with a pool (renting) for our health. I have a hospital home-bound great grandson here and 2 of my daughters, and we all have health problems. I can't get into pool or hot tub without rails and we're waiting on landlord for that. He didn't want us doing it. Anyway, The beauty around me and family keep me going. I have 18 grandchildren and great grandchildren, which is a blessing, but they are rather scattered now from WA state to FL to MA and to the Philippines. Just wish I could visit like I used to. My ADHD mind had gone wild. You will probably never ask another question!