Hello @denisepierce and welcome to Connect. I am glad that you found this forum. NETs are a rare form of cancer, and it helps to meet with others who are travelling down the same road. I came to Connect before my third surgery for NETs in the upper digestive tract. I had no symptoms to indicate that there were any problems; it simply showed up in an upper endoscopy.
Share, as you would like, a bit about your journey with NETs. How long ago were you diagnosed? Was your large cell neuroendocrine carcinoma located in the digestive tract?
I was diagnosed with non small cell carcinoma, they removed part of lung, then diagnosed with large cell carcinoma cells, I took chemo but it showed up again, took radiation that shrunk the tumor. Now doing ct scans to monitor.
I was diagnosed with non small cell carcinoma, they removed part of lung, then diagnosed with large cell carcinoma cells, I took chemo but it showed up again, took radiation that shrunk the tumor. Now doing ct scans to monitor.
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I was diagnosed with non small cell carcinoma, they removed part of lung, then diagnosed with large cell carcinoma cells, I took chemo but it showed up again, took radiation that shrunk the tumor. Now doing ct scans to monitor.
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2 ReactionsIt sounds like you are getting good follow-up, @denisepierce. How often will you be getting CT scans?
Every 3 months