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Neuroendocrine Carcinoma with Liver Metastasis

Neuroendocrine Tumors (NETs) | Last Active: Sep 19 6:17am | Replies (79)
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Profile picture for cassandrar4 @cassandrar4

Hello, my name is Cassandra, and I have been diagnosed with a neuroendocrine tumor. However, this is new and scary to me. They said that it has spread to the lymph nodes and liver. I am so hurt because it seems like it happened so fast. I feel lost but I know my God has me.

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Replies to "Hello, my name is Cassandra, and I have been diagnosed with a neuroendocrine tumor. However, this..."
estrellita1 | @estrellita1 | Sep 15 7:54pm

Hi Cassandra my husband is in the same way you are, very sad, he has a lot of medicine, octreotide an injection every 21 days, pancreatic enzimas called Creon, i hope he will be good i am with him all the time, i trust in god i have hope

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Teresa, Volunteer Mentor | @hopeful33250 | Sep 15 9:06pm

Hello @cassandrar4 and welcome to the NETs group. It is understandable that you feel lost. There are good treatments available now for NETs. Is your neuroendocrine tumor in your digestive tract?

Has your medical team suggested a treatment plan yet? What is your most difficult symptom now?

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