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Did you see considerable improvement in your MAC after a lobectomy?

Posted by lorettarichardson59 @lorettarichardson59, Sep 12 10:47am

My 81 year old has been suffering with MAC since September 2024. We just started our journey with Mayo Clinic. We are excited and encouraged. Lobectomy is on the table now and I’m curious if anyone with MAC has had a lobectomy, and did you see considerable improvement?

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Mentor
Sue, Volunteer Mentor | @sueinmn | Sep 12 11:12pm

@lorettarichardson59 Hello, I am glad you found your way to our group, and to Mayo Clinic.
Can you tell us a little about your journey so far - what treatments and medications have you tried, what damage is in your lungs?

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lorettarichardson59 | @lorettarichardson59 | Sep 13 6:20am

My 81 year old husband developed MAC infection a year ago. Our local infectious disease doctor treated him with 3 antibiotics for three months. Then the next three months with IV infusions. He was getting worse so I contacted Mayo Clinic. He has severe Cavitary MAC infection in his right upper lobe. We have just been at Mayo the last week for a series of tests to determine if he qualifies and can tolerate a lobectomy. We are waiting for review of those tests and some direction as to the route we are going. In addition to the MAC he has COPD, diabetes, psoriasis and psoriatic arthritis. All those medications seem to fight against each other.

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Mentor
Sue, Volunteer Mentor | @sueinmn | Sep 13 9:07am
In reply to @lorettarichardson59 "My 81 year old husband developed MAC infection a year ago. Our local infectious disease doctor..." + (show)
Profile picture for lorettarichardson59 @lorettarichardson59

My 81 year old husband developed MAC infection a year ago. Our local infectious disease doctor treated him with 3 antibiotics for three months. Then the next three months with IV infusions. He was getting worse so I contacted Mayo Clinic. He has severe Cavitary MAC infection in his right upper lobe. We have just been at Mayo the last week for a series of tests to determine if he qualifies and can tolerate a lobectomy. We are waiting for review of those tests and some direction as to the route we are going. In addition to the MAC he has COPD, diabetes, psoriasis and psoriatic arthritis. All those medications seem to fight against each other.

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Oh my, he has a lot going on. I hope the docs can find some solution. Lobectomy is major surgery, but he is in the best hands.

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amap2025 | @amap2025 | Sep 14 10:11am
In reply to @lorettarichardson59 "My 81 year old husband developed MAC infection a year ago. Our local infectious disease doctor..." + (show)
Profile picture for lorettarichardson59 @lorettarichardson59

My 81 year old husband developed MAC infection a year ago. Our local infectious disease doctor treated him with 3 antibiotics for three months. Then the next three months with IV infusions. He was getting worse so I contacted Mayo Clinic. He has severe Cavitary MAC infection in his right upper lobe. We have just been at Mayo the last week for a series of tests to determine if he qualifies and can tolerate a lobectomy. We are waiting for review of those tests and some direction as to the route we are going. In addition to the MAC he has COPD, diabetes, psoriasis and psoriatic arthritis. All those medications seem to fight against each other.

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I am so sorry you are dealing with so much. I also Dr at Mayo and am so very happy about my care and treatment there.

REPLY
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jillcrawford | @jillcrawford | Sep 15 1:35pm

How many lobes were affected and were you helped by lobectomy?

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lorettarichardson59 | @lorettarichardson59 | Sep 15 2:25pm

Upper right lobe only. Surgery hasn’t taken place yet.

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