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I honestly have no idea but you should reach out to Mayo and see if they could take you. There’s no better care than Mayo. I live in Las Vegas and was under the care of an oncologist here who basically just put me on lanreotide shots. “Standard procedure” mainly because he didn’t know much about neuroendocrine cancer! I’m going on my 4th year after having the tumor on my liver removed. I go to mayo every six months for my scans. So far so good, nothings changed but I hold my breath before every scan. I chose to get off the shots because they wreaked havoc on my system. So for me when the treatment didn’t “cure” my cancer & make my quality of life worse I chose to stop it. I do hope you reach out to Mayo and I wish you God speed. Stay in touch if you like. ♥️

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Replies to "I honestly have no idea but you should reach out to Mayo and see if they..."

How long have you been off the shots? How are your scans? I have so many knows from the shots and hate to think that is my future. Running out of space to get shot as its is all knotty,
Anyway would love to know more about your experience with no shots