I honestly have no idea but you should reach out to Mayo and see if they could take you. There’s no better care than Mayo. I live in Las Vegas and was under the care of an oncologist here who basically just put me on lanreotide shots. “Standard procedure” mainly because he didn’t know much about neuroendocrine cancer! I’m going on my 4th year after having the tumor on my liver removed. I go to mayo every six months for my scans. So far so good, nothings changed but I hold my breath before every scan. I chose to get off the shots because they wreaked havoc on my system. So for me when the treatment didn’t “cure” my cancer & make my quality of life worse I chose to stop it. I do hope you reach out to Mayo and I wish you God speed. Stay in touch if you like. ♥️

Hello @awu99 and welcome to the NETs group on Mayo Connect. I see that you have recently been diagnosed with a pNET. It is great that you are looking for information and a second opinion. If you would like to inquire about a second opinion from Mayo Clinic, I suggest you visit Mayo's appointment center. Here is the link: https://connect.mayoclinic.org/message-center/conversation/13728/.

If you open this link and scroll down, you will see specific information for international patients.

Here is a link to some other pNET discussion groups: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?search=pNET&index=discussions
As you read the posts in these groups, you will learn about others' experiences with pNET.

As this is a new diagnosis for you, I'm wondering how you are feeling. What symptoms led to the diagnosis of pNET? What treatment(s) have been suggested by your medical team?