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Grade 3 Malignant Meningioma 2 Tumors
I was recently diagnosed with 2 malignant meningiomas, one in the center of my brain and one at the bottom of my head, top of my neck. My levels are quadrupling, the seizures are so intense, one ends and another starts right away, they’re getting stronger and longer, experiencing loss of vision completely in my right eye, but the vision itself comes and goes. Very irritable, very anxious. I seem to be having definite changes in my moods and mental state. And for the last week, I have been absolutely exhausted, almost to the point of not being able to even function and on top of that, my spouse isn’t supportive in the least, I have no family, no friends, im on my own, (well him, but I don’t count him, hes the worst.) and he quite literally rips me to shreds all day, everyday. Tears down my entire character, tells me how easily replaceable I am, how easy it would be to go be with another woman (which he’s already been doing for at least two years, but won’t admit it, even with physical proof! lol narcissist much? 🤣🤦🏼♀️) long story short, all he does is talk shit, blames me for having these tumors, won’t allow me to go get my next biopsy and won’t let me get the surgery to remove what they can of the tumors. My doctor told me to keep the stress to an absolute minimum and not get myself worked up or raise my blood pressure (it induces the seizures) and for months now, the seizures have been terrible because of my spouse. Anyone else in the same boat? Have advice? I just can’t wrap my head around him knowing I have a rare and extremely aggressive set of tumors and realistically, im going to die, and he can’t do anything but be terrible to me, all while playing the victim and taking no accountability. You’d think he would pull his head out of his ass and let the rest of my life be in as much peace as possible, but no, he wants me to be in a living hell, while he prays I go to hell! Oh and I forgot to mention, this man even puts his hands on me and tells me he doesn’t care that im sick and to “suck it up and be in pain”, (really wish he knew how extremely painful these types of headaches and seizures are!!) I know this illness is already extremely aggressive, but is it possible for “the end” to “come faster” due to the environmental and psychological factors im dealing with?
If there is anyone with the same (grade 3 malignant meningioma) illness, what were your beginning symptoms and your current symptoms? Do you have seizures, loss of ability to speak correctly, severe headaches, loss of consciousness, etc.? Have you even come to terms with our lovely “death sentence”? And finally, what did you do for treatment? I know chemo isn’t an option, but has anyone had surgery or done radiation, natural remedies maybe?
Thanks for sticking in while I had a mini vent session! I apologize, I just want to know if I’m alone in this or if someone understands the hell im in.
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Hi, I am so sorry for for your physical and emotional pain and symptoms overall. I've had a Foramen Magnum Meningioma for a bit over 2 years. The symptoms are worsening and I see Neurosurgery @ Mayo next month. Surgery will soon follow.
First, sounds like your boyfriend is a complete and utter Incompassionate Ass. He is hurting you instead of being a caring loving friend. Get rid of him as fast as you can!!
Too much crap to deal with without him around. I will certainly keep you in my thoughts and prayers.
Take care
Van
KC,MO
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6 ReactionsFind support somewhere and go live alone somehow. And get surgery at Mayo! They removed my Who grade 2 meningioma in 2007. I had a non supportive husband- now Ex- and it took a few years to get myself back functioning... you likely need radiation too if possible. Good Luck! Not an easy future for sure!
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3 Reactionsruarose: Do you have insurance through your spouse or independently? If you do, please, please make an appointment for the next steps that have been recommended to you. A grade 3 meningioma responds better to treatment than a glioblastoma. Also, I think you should think about connecting with a womens' shelter for domestic abuse victims.
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2 ReactionsHi! A 6mm lesion in the foramen magnum/jugular was recently found on a CT. The radiologist said “possible meningioma”. I am having a MRI w/w/o contrast on Thursday. This research I have found said that this is a problematic area because of all the nerves and blood vessels as well as difficulty accessing for surgery. I assume that it will be a watch and wait situation. Any information that you are willing to share about your experience would be very helpful. Thank you and I wish you all the best!
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1 Reactionwell welcome to the group and i had the tumor frontal right side . classed
right under the big one. glioblastoma . mine was cancerous,
and lung cancer. had to have brain surgery that went ok. They later had to
reopen me and fix a bleeder, after that radiation and chemo. After all
that and cancer was gone, last scans showed the same so i am happy with
that. now just adjust the meds for the seizures. between being a firm
believer in god and angels i think i'm holding up good, prayer groups are a
must and good family or friends to show their support. that and get a
doctor with a good track record. and dont fret too much , your still here
and a fighter. thats a must. have something to fight for..
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2 ReactionsRandyShields: I am so happy to read your last brain scans show no cancer. That's progress!
Go to a woman’s shelter before this man completely destroys you. You will never ever get any support from him. I am so sorry for the situation you are in and wish there was a way to help. God bless you and keep you.
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1 ReactionTHANK YOU
@jmitch8
Im sorry in the delay in getting back to you. I hope you are doing well!
First, make sure the size of 6mm is the correct measurement. A 6mm Meningioma is about 1/4 of an inch. 6 cm on the other hand is 2.36 inches wide. So..it is possible that at 6mm it may be a watch and wait situation. If the true measurement is 6 cm that would probably be another story.
Either way a FMM is a real crappy place to have something " foreign" occupying limited and valuable space.
The whole idea is pretty concerning and it's hard not to think of the issues constantly. Do the best you can. Find fun and joy and the good in life. No matter what I have confidence you will be good during and at the end of this journey.
I love to listen and talk! Please feel free to contact me ANYTIME!
Take care for now.
Van
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