1. < Polymyalgia Rheumatica (PMR)
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I am afraid the pain will never end.

Posted by toryf @toryf, Sep 3 5:57pm

Hi.

I am a 61 year old female and woke up after surgery in January with what the rheumatologist (and I) think is PMR. My life is so diminished as the pain has not relented. I had 90-95% relief at 20 mg of Prednisone but was told (and understood) that it was unwise to stay there so got myself down to 8mg.

The pain was just too bad so I bumped back to 10 mg. And then back up to 12 mg. The last time I felt ok/functional was at 15 mg but don't want to go that high again of I can help it.

I started Kevzara 2.5 weeks ago. I am looking for some hope. Straight up. Thank u to all.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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toryf | @toryf | Sep 12 1:49pm
In reply to @ropnrose "In July 2024, I was diagnosed with PMR and suspected GCA. I had bilateral temporal biopisies..." + (show)
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In July 2024, I was diagnosed with PMR and suspected GCA. I had bilateral temporal biopisies done, but they were negative. The report stated that, that didn't necessarily mean I didn't have GCA. I had all the symptoms (except vision issues). I was started on 60 mg. pred. at that time. When my taper got me to 8 mg. in December, I had a flare. My PMR and GCA symptoms returned. That's when I told my rheumatologist that I wanted to try Actemra infusions. She agreed with me.

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Thank you for that information. I am so glad u don't seem to have GCA (or avoided it through proper treatment) that now includes Actemra.

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