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Small Intestine Bacteria Overgrowth (SIBO)

Digestive Health | Last Active: 4 hours ago | Replies (478)

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@mutter3

Datotate Pet Scan. I had a chromogranin a that was off the chart, same with gastric level. Flushing,severe abdominal pain,had a positive octreotide scan showing something on the pancreas. However, no one could ever locate the tumor. My doctors here said NET and carcinoid syndrome. I didn't believe them because without a tumor to biopsy it couldn't be proven. When the doctors at Mayo saw me they were questioning if it was NET and carcinoid syndrome. After many test the Datotate scan ruled it out. Now it's SIBO,still something up with the pancreas,BAM and a couple of other things being looked at. Thankful NET and carcinoid syndrome were ruled out.

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Replies to "Datotate Pet Scan. I had a chromogranin a that was off the chart, same with gastric..."

What is BAM? Also just be aware that G68 scans may not light up a net if it tumor doesn’t show up on scans. Did you have upper endoscopy and colonoscopy? Also if they see something on pancreas an endoscopic ultrasound of the pancreas may be able to visualize better. I’m assuming you had mri and ct . I’m only saying all this because I have carcinoid symptoms for 5 years and still trying to figure it out. I have not had gallium scan yet but plan too. Glad Mayo was thorough. Maybe I’ll make appt.