Living with Neuropathy - Welcome to the group

It took a long time for me to finally get to see a neurologist who sent me for a test to confirm what he already suspected. The diagnosis was peripheral neuropathy of which there is no treatment and no cure at the moment all I was offered was as and when I should need it to see my GP who would prescribe me appropriate pain relief. I don’t want to be the bearer of tidings but I hope you can come to terms with this horrible condition and find something that gives you some sort of relief good luck and good hunting Margaret.

The following event could offer some treatment hopes:
https://www.eventbrite.com/e/the-next-generation-of-brain-research-tickets-1538372486519?vcrmeid=vOTVjIY0wUOjZcJVyncIvw&vcrmiid=4StTP5CFgEGSuUNjbmuuVw
Monday, September 22
The Next Generation of Brain Research
By American Brain Foundation
Meet the researchers advancing the future of brain health.

Date and time
Monday, September 22 · 8 - 9pm EDT
Location: Online

What is an m scs implant?

A "SCS" is probably a spinal cord stimulator, a device that is implanted and stimulates spinal nerves. I did not post the original use of SCS so I can't say what the original post meant by using SCS.

Hey everyone,
My husband was diagnosed with peripheral neuropathy about 3 months ago after years of complaining to the dr about the numbness and tingling in his hands and feet. He is on gabepentin now and that helps to an extent. But when he puts his feet down from being up in the recliner all night they hurt real bad. Any suggestions for that type of pain?

Hi, @magrose45, I realize that there is no cure for neuropathy at this time, but there are things one can do to help mitigate the symptoms. I have a pain pump which has not yet given me relief from my neuropathy, but for just one day about three weeks ago after giving myself a bolus(extra boost of medication via remote control), I suddenly had the most amazing experience. All the pain in my feet and all along the backs of both legs just disappeared! It was almost magical. I thought I had turned a corner. First time in two years I had gotten any relief. Then, the next day, all the pain returned. So, my pain doc is going to do a dye test to see if the problem can be identified. I guess what I am trying to say is that you have to be your own, best advocate. Just because some doc says there is nothing else that can be done, that may not be true. Keep searching, my friend. Good luck!

Welcome @littlec74, Sorry to hear your husband is having such pain in his feet from the neuropathy. You might find it helpful to scan through the following discussion to learn what others have shared.
-- What treatment helps for feet neuropathy?
https://connect.mayoclinic.org/discussion/treatment-for-periferic-neuropathy/
The Foundation for Peripheral Neuropathy has a list of different treatments if you haven't already looked through them - https://www.foundationforpn.org/therapies/

Has he tried any of the over the counter creams or lotions for the feet to see if they offer and relief?

I accidentlly saw this group and some of the topics when checking the legitimacy of an ad on the weather channel selling re-chargeable stimilating device to help/cure nervers in your feet. Was interested to see what others experiences were, from there on to the shoes topic.. interesting.

Neuragen seemed to help me some.

Welcome @1966, We are happy you found us here on Connect. If you haven't already checked out all of the discussions in the Neuropathy Support Group, here's a list of the discussions - https://connect.mayoclinic.org/group/neuropathy/.

How long have you been dealing with neuropathy or it's symptoms? Have you been diagnosed with neuropathy?