Surf is UP !!!! @@

Posted by surftohealth88 @surftohealth88, Aug 11 12:17pm

So- here we go ! 😣
The time has FINALLY come, but at the same time "suddenly” ... This Tuesday (tomorrow) my husband is having surgery at noon and according to written instructions he will be released next day to go home.

I am so very fortunate that our younger daughter lives in the same area so she will be giving us a ride and keep me company during procedure, otherwise the surgeon would be forced to put me "under" too 🥴 to stop my crazy pacing through corridors.

We are ready as much as one can be ready, all is sanitized, cleaned, cooked, folded and sparkly and stored in one place so there is no guessing "where the heck is that Senokot" 🙄. My brain is scrambled completely because of the stress and I feel like my fellow posters here that are on ADT - yesterday I called a bookcase "the thing with boards and books" XP.

Prayers and good vibes are welcome : ))), and I will keep you all posted about everything.

I also want to use this opportunity to thank everybody on this forum for every advice and every comforting word that I received since I came here in February (or was it March ?), I can not remember since all of those months are one very loooong blurry day that never ended ....

I will leave you now with a short poem : )) and will post again as soon as I can : ). HUGSSSS to allll !!!

If you believe in fairies,
ask them,
If you believe in God,
ask him,
If you believe in destiny,
ask it,
Ask them all to send healing
for surfer who sailed the seas,
trying to find peace,
but never found it.
Ask for gentle waves and siren songs,
the mistral breeze to bring him home.
I’ll be waiting,
forever,
without a cease.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for surftohealth88 @surftohealth88

Hi Chippy : )) ! Thanks for your input - did you have RT or RP ? It is standard protocol to have the first PSA test done about 8 weeks post radical prostatectomy .

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Radical followed by radiation/adt at BCR 2 years later.

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Profile picture for richardwood3 @richardwood3

Congrats on your three-week report. This is my eight-week report so I very much understand your concern and optimism. Be patient and make sure he is getting a lot of rest. Last February during my annual physical my primary physician noticed that my PSA reading had jumped from 1.4 (past 5 years) to 4.6. For me being a 70 year-old active man, 4.6 PSA was considered "normal" My doc said if this had been my 1st PSA test in 5 years, he would not have done anything other than active surveillance. What concerned him was the sudden rise from 1.4 to 4.6 in less than one year. Normally PSA rises slowly. That is why he ordered MRI and biopsy which confirmed two 1-cm cancerous growth but they appeared to be confined to the prostate. Eight weeks out from surgery, my PSA has dropped to .04, virtually undetectable. Yes first month after surgery I was using 3-4 tena pads per day. Now I'm down to 1 pad and fully able to urinate and empty bladder. I have a few ED issues but oncologist says be patient (3-9 months) and he expects full recovery since he did nerve sparing procedure. This surgery is hard on your body so your husband should be patient and allow the healing to happen slowly from the inside out. See the pathology report as a road map to recovery. After 8 weeks I'm walking a few miles every day or so and getting more energy but just listen to my body and take an afternoon when I'm tired (which I never used to do). . Also drink lot's of water....Best wishes on a quick recovery! Rick

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Congrats; it sounds like your recovery is coming along really well. I also was 70 when 14+ months ago I had NS RARP. For me the continence was a bit of learning to adjust to the new normal. Although I didn't need pads after a few days after the catheter came out, I had numerous minor releases over the next several months. I call it the new normal as I think my mind/body needed to adjust my subconscious controls as I resumed normal activities. For example, after 2 months when I could start back at the gym, everything was fine. But the first time I actually "strained" lifted weights, I had a minor release. As far as ED, that was a longer recovery for me. It took me about 14 months to get back to where I was before surgery. I've been on daily 5 mg tadalafil and when I actually have intercourse I also use 100 mg sildenafil on those days. There were times I wondered if I'd ever recover, but it just took a while. I hope you recover (as your doctor said) in 3-9 months, but don't give up if it takes longer. It sure took longer for me for those nerves to wake up and get back to normal. Best wishes.

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Thanks everybody for nice comments and encouragement 💖😊 !

Also many thanks to members who are sharing their recovery time-line here 😃👍 - it is useful to compare notes and see that everybody has different path to recovery and to take it easy.

It always makes me sad when new patients compare their recovery time with very rare examples of immediate continence and instant erections and think that they are not having good recovery path or that they will never recover : ((. That is not the case - body needs a long time to heal and everybody is different 😎.

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4 WEEK REPORT 😃

I can not believe 4 weeks passed since surgery. Time flew so fast and it seems like it happened 4 years ago, I do not know how to explain it. Maybe because we now live completely normal life with almost normal level of activity, or maybe it is how our minds work and we try to forget stressful situations as fast as possible, but result is the same, details fade. All in all, we are very happy with results and if we had a chance to make a choice all over again, we would choose surgery as the first line of defense again. Not to mention that detailed pathology post RP moved his gleason score up by TWO points and some of proposed treatments for intermediate cancer would have been out of question (like focal), or TULSA etc, and results would have been total failure. All PSMA and MRI and TRUS showed localized cancer but post op pathology showed possible uni-focal escape. So, it is nice to know that we have available a second line of defense - radiation if and when needed.

At this point the only reminder of surgery are tiny pink lines on his abdomen. His “fur" is starting to grow back and they will soon be invisible. He has very minor incontinence - about 30 to 35 ml in 24 hours. If you wonder how much that is, look at the size of Pepto tiny measuring cup and divide that in 3 equal parts per pad. Since the amount is getting smaller and smaller as time passes, I can say with confidence that it will probably resolve completely in very near future. If it stays this level, it is a non issue.

He is taking long brisk walks every morning (about 3 miles), doing Kegel exercises by himself. He went to PT twice at the hospital but honestly nothing remarkable was explained or done there. He found all those books and videos more helpful and informative. Since his progress is very good, he will continue to do exercise using his own “program” which is combination of all that he read. His energy is as it was before surgery and he can not wait for 6 weeks to pass to try to do some pickle ball and at least some paddle-boarding at local lakes.

He is still taking Cialis and will continue to do so for better healing and for preventing atrophy. He used to have somewhat elevated BP before surgery but now it is ideal and he does not have to take BP meds any more, so Cialis is correcting 2 things at once ; ). Equipment is not tested yet in full production but some nighttime spontaneous movements are there. That area can take up to 24 mos to fully recover for action and honestly with this worrisome pathology report and while waiting for the first PSA my mind is not occupied with that - what I need are hugs, snuggling, smooching and romantic moments and I have these in abundance so my life is full and overflowing :)))).

As always - hugsssss to all and wishing you great success with your treatments and wonderful time with your friends and family 💗🤗

REPLY
Profile picture for surftohealth88 @surftohealth88

4 WEEK REPORT 😃

I can not believe 4 weeks passed since surgery. Time flew so fast and it seems like it happened 4 years ago, I do not know how to explain it. Maybe because we now live completely normal life with almost normal level of activity, or maybe it is how our minds work and we try to forget stressful situations as fast as possible, but result is the same, details fade. All in all, we are very happy with results and if we had a chance to make a choice all over again, we would choose surgery as the first line of defense again. Not to mention that detailed pathology post RP moved his gleason score up by TWO points and some of proposed treatments for intermediate cancer would have been out of question (like focal), or TULSA etc, and results would have been total failure. All PSMA and MRI and TRUS showed localized cancer but post op pathology showed possible uni-focal escape. So, it is nice to know that we have available a second line of defense - radiation if and when needed.

At this point the only reminder of surgery are tiny pink lines on his abdomen. His “fur" is starting to grow back and they will soon be invisible. He has very minor incontinence - about 30 to 35 ml in 24 hours. If you wonder how much that is, look at the size of Pepto tiny measuring cup and divide that in 3 equal parts per pad. Since the amount is getting smaller and smaller as time passes, I can say with confidence that it will probably resolve completely in very near future. If it stays this level, it is a non issue.

He is taking long brisk walks every morning (about 3 miles), doing Kegel exercises by himself. He went to PT twice at the hospital but honestly nothing remarkable was explained or done there. He found all those books and videos more helpful and informative. Since his progress is very good, he will continue to do exercise using his own “program” which is combination of all that he read. His energy is as it was before surgery and he can not wait for 6 weeks to pass to try to do some pickle ball and at least some paddle-boarding at local lakes.

He is still taking Cialis and will continue to do so for better healing and for preventing atrophy. He used to have somewhat elevated BP before surgery but now it is ideal and he does not have to take BP meds any more, so Cialis is correcting 2 things at once ; ). Equipment is not tested yet in full production but some nighttime spontaneous movements are there. That area can take up to 24 mos to fully recover for action and honestly with this worrisome pathology report and while waiting for the first PSA my mind is not occupied with that - what I need are hugs, snuggling, smooching and romantic moments and I have these in abundance so my life is full and overflowing :)))).

As always - hugsssss to all and wishing you great success with your treatments and wonderful time with your friends and family 💗🤗

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Sounds like we have another success story in the making.
Great news.

REPLY
Profile picture for surftohealth88 @surftohealth88

4 WEEK REPORT 😃

I can not believe 4 weeks passed since surgery. Time flew so fast and it seems like it happened 4 years ago, I do not know how to explain it. Maybe because we now live completely normal life with almost normal level of activity, or maybe it is how our minds work and we try to forget stressful situations as fast as possible, but result is the same, details fade. All in all, we are very happy with results and if we had a chance to make a choice all over again, we would choose surgery as the first line of defense again. Not to mention that detailed pathology post RP moved his gleason score up by TWO points and some of proposed treatments for intermediate cancer would have been out of question (like focal), or TULSA etc, and results would have been total failure. All PSMA and MRI and TRUS showed localized cancer but post op pathology showed possible uni-focal escape. So, it is nice to know that we have available a second line of defense - radiation if and when needed.

At this point the only reminder of surgery are tiny pink lines on his abdomen. His “fur" is starting to grow back and they will soon be invisible. He has very minor incontinence - about 30 to 35 ml in 24 hours. If you wonder how much that is, look at the size of Pepto tiny measuring cup and divide that in 3 equal parts per pad. Since the amount is getting smaller and smaller as time passes, I can say with confidence that it will probably resolve completely in very near future. If it stays this level, it is a non issue.

He is taking long brisk walks every morning (about 3 miles), doing Kegel exercises by himself. He went to PT twice at the hospital but honestly nothing remarkable was explained or done there. He found all those books and videos more helpful and informative. Since his progress is very good, he will continue to do exercise using his own “program” which is combination of all that he read. His energy is as it was before surgery and he can not wait for 6 weeks to pass to try to do some pickle ball and at least some paddle-boarding at local lakes.

He is still taking Cialis and will continue to do so for better healing and for preventing atrophy. He used to have somewhat elevated BP before surgery but now it is ideal and he does not have to take BP meds any more, so Cialis is correcting 2 things at once ; ). Equipment is not tested yet in full production but some nighttime spontaneous movements are there. That area can take up to 24 mos to fully recover for action and honestly with this worrisome pathology report and while waiting for the first PSA my mind is not occupied with that - what I need are hugs, snuggling, smooching and romantic moments and I have these in abundance so my life is full and overflowing :)))).

As always - hugsssss to all and wishing you great success with your treatments and wonderful time with your friends and family 💗🤗

Jump to this post

Fingers crossed for that first post-surgery PSA result!

REPLY
Profile picture for peterj116 @peterj116

Sounds like we have another success story in the making.
Great news.

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Awe Peter 💗, "from your mouth to God's ears", as they say in old country.
Are you ready for spring 🌸🌼🌸, now that you do not have to worry about pads are you planning to have some extra fun ? 😃

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Profile picture for ucla2025 @ucla2025

Fingers crossed for that first post-surgery PSA result!

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Thank you Ucla2025 sooo much 💖🌺💖 I really hope that we will finally have a break and at least some luck after all of this nonsense that we had to deal with since February 😞 ... Every single step was a struggle and even now we have to fight for simple things such as is a timely appointment. But as I see from your posts there is no need to explain you how it feels ... I am wishing your husband super successful treatment and complete eradication of cancer ✨🍀

REPLY
Profile picture for surftohealth88 @surftohealth88

Awe Peter 💗, "from your mouth to God's ears", as they say in old country.
Are you ready for spring 🌸🌼🌸, now that you do not have to worry about pads are you planning to have some extra fun ? 😃

Jump to this post

Yep. Spring's nearly here, so I'll be able to go on long walks & see how long this pump lasts. Stress incontinence has gone (yay) but urge incontinence is still there. Turns out these things aren't water-tight. But no more pads, so I'm happy.

REPLY
Profile picture for surftohealth88 @surftohealth88

4 WEEK REPORT 😃

I can not believe 4 weeks passed since surgery. Time flew so fast and it seems like it happened 4 years ago, I do not know how to explain it. Maybe because we now live completely normal life with almost normal level of activity, or maybe it is how our minds work and we try to forget stressful situations as fast as possible, but result is the same, details fade. All in all, we are very happy with results and if we had a chance to make a choice all over again, we would choose surgery as the first line of defense again. Not to mention that detailed pathology post RP moved his gleason score up by TWO points and some of proposed treatments for intermediate cancer would have been out of question (like focal), or TULSA etc, and results would have been total failure. All PSMA and MRI and TRUS showed localized cancer but post op pathology showed possible uni-focal escape. So, it is nice to know that we have available a second line of defense - radiation if and when needed.

At this point the only reminder of surgery are tiny pink lines on his abdomen. His “fur" is starting to grow back and they will soon be invisible. He has very minor incontinence - about 30 to 35 ml in 24 hours. If you wonder how much that is, look at the size of Pepto tiny measuring cup and divide that in 3 equal parts per pad. Since the amount is getting smaller and smaller as time passes, I can say with confidence that it will probably resolve completely in very near future. If it stays this level, it is a non issue.

He is taking long brisk walks every morning (about 3 miles), doing Kegel exercises by himself. He went to PT twice at the hospital but honestly nothing remarkable was explained or done there. He found all those books and videos more helpful and informative. Since his progress is very good, he will continue to do exercise using his own “program” which is combination of all that he read. His energy is as it was before surgery and he can not wait for 6 weeks to pass to try to do some pickle ball and at least some paddle-boarding at local lakes.

He is still taking Cialis and will continue to do so for better healing and for preventing atrophy. He used to have somewhat elevated BP before surgery but now it is ideal and he does not have to take BP meds any more, so Cialis is correcting 2 things at once ; ). Equipment is not tested yet in full production but some nighttime spontaneous movements are there. That area can take up to 24 mos to fully recover for action and honestly with this worrisome pathology report and while waiting for the first PSA my mind is not occupied with that - what I need are hugs, snuggling, smooching and romantic moments and I have these in abundance so my life is full and overflowing :)))).

As always - hugsssss to all and wishing you great success with your treatments and wonderful time with your friends and family 💗🤗

Jump to this post

Thanks so much for the update and good news. I am so happy for you both

REPLY
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