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Anyone have chronic lymphocytic leukemia (CLL)?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (142)
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Profile picture for mcconachie @mcconachie

Hi I am new to this and I just saw on some doctor's papers that I have CLL. Am due to go to hematologist in November but can anyone give some heads up what I can do to help myself before then? I honestly am in the dark. I have read some information but am having difficulty understanding it!

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Replies to "Hi I am new to this and I just saw on some doctor's papers that I..."
Lori, Volunteer Mentor | @loribmt | Sep 15 9:57am

Hi @mcconachie Welcome to Connect. I’m sure your mind is racing with questions after having learned that you may have CLL but no explanations forthcoming until a couple of months from now!
There are several members in Connect who have CLL, some newbies such as yourself and others have had this chronic form of Luekemia for many years. It’s generally slowly developing and from my understanding, remains one of the more treatable forms of leukemia.
I found a reply that I made to another member a few months ago. It’s filled with quite a few useful references that you might find helpful. Here’s the link:
https://connect.mayoclinic.org/comment/1277732/
Were you having symptoms that led up to your diagnosis or was this found with routine labs from a physical?

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