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Complications with Peripheral Neuropathy

Posted by kadfrompa3232 @kadfrompa3232, Jul 25, 2024

I was diagnosed with PN in 2018 with symptoms of tingling and pain in my feet. First Medication was gabapentin, (caused dizziness and falling) along with baclofen. Now on Lyrica, Baclofen (3X's day) ,
Cymbalta at night for cramps, Lidocaine/Prilocaine cream on both feet, especially top and bottom of toes. The neuropathy is now in both feet, in calf muscles in both legs, Additional symptoms are pain, stabbing, shock like pain, balance issues (using cane) severe burning in both feet, both legs have redness where nerves are irreparably damaged. Pain is so bad at times I cannot walk without pain and it prevents me from walking and participating in many areas I loved to do in the past. Many alternative treatments, hard to know if any really work. thank you.

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lorriemartin6gmail | @lorriemartin6gmail | Jul 14 8:30pm

Chronic bad lower back pain neuropathy & right shoulder arthritis . I take gabbapentin Tylenol daily, tramadol when it is worse couple times a week . I have had a traumatic accident many yrs ago and diabetes. Currently looking to remove a pituitary gland large tumor. Keep my sugar down and exercise up , helps my mobility and pain .

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samgalm | @samgalm | Sep 11 12:03am
In reply to @harley22 "I have same as you described. So bad sometimes I can’t walk either. Everyday I have..." + (show)
Profile picture for harley22 @harley22

I have same as you described.
So bad sometimes I can’t walk either.
Everyday I have pain,and I take Tramadol and Ibuprofen.
Gabapentin and nany of other drugs did not help me.
Will behaving Rituxan infusions in few weeks Andi hope it will help me.
Right now thenumbness has gone up to my right hand, and I can’t write with a pen.
Hard for me to even sign my name!
Letshopefor a drug that will help us

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What are Rituxan infusions and how do they help manage peripheral neuropathy pain and suffering?

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samgalm | @samgalm | Sep 11 12:14am
In reply to @strawberry10 "Yes it does because that is what it does. You need a neurologist to do a..." + (show)
Profile picture for strawberry10 @strawberry10

Yes it does because that is what it does. You need a neurologist to do a nerve study and to do a DNA test to see if it actually is CMT.

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What is CMT?

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1 reply
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John, Volunteer Mentor | @johnbishop | Sep 11 7:51am
In reply to @samgalm "What is CMT?" + (show)
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What is CMT?

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CMT (Charcot-Marie-Tooth Disease) - Here are some member discussions and comments on CMT - https://connect.mayoclinic.org/search/discussions/?search=CMT.

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baciobabe | @baciobabe | Sep 11 9:39am
In reply to @terry1976 "I would follow written discharge intructions, until you can speak either with the surgeon's office or..." + (show)
Profile picture for terry1976 @terry1976

I would follow written discharge intructions, until you can speak either with the surgeon's office or discuss with your pharmacist

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I concur, the idea is to make you comfortable, you don’t want to find yourself throwing up which will put a lot of strain on your body.

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williampassas | @williampassas | Sep 11 12:42pm

R- ALPHA LIPOIC ACID helps reduce pain a lot. Research on Grok AI Perpheral Neuopathy with asking.Enter bloodwork

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1 reply
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carol1024 | @carol1024 | Sep 12 5:46am
In reply to @williampassas "R- ALPHA LIPOIC ACID helps reduce pain a lot. Research on Grok AI Perpheral Neuopathy with..." + (show)
Profile picture for williampassas @williampassas

R- ALPHA LIPOIC ACID helps reduce pain a lot. Research on Grok AI Perpheral Neuopathy with asking.Enter bloodwork

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I checked into that and almost ordered it until I read it's not good to take while on chemo.

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1 reply
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williampassas | @williampassas | Sep 12 7:49am
In reply to @carol1024 "I checked into that and almost ordered it until I read it's not good to take..." + (show)
Profile picture for carol1024 @carol1024

I checked into that and almost ordered it until I read it's not good to take while on chemo.

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DID NOT KNOW CHEMO WAS INVOLVED. SORRY.
STILL ASK GROK WITH DIAGNOSIS AND MED FOR SUGGESTIONS.

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kathan55 | @kathan55 | Sep 13 9:50am

I have had CIPN (chemo induced peripheral neuropathy) for 20 years. After receiving and completing chemo in 2005. I understand your frustration. No one mentioned CIPN in 2005. I started having excruciating pain. The initial diagnosis was fibromyalgia, chronic myofascial pain and chronic fatigue. CIPN was diagnosed years later. After the pain began, I was able to find pain management. After the diagnosis of CIPN, I tried Lyrica, gabapentin and could not tolerate either. I do take baclofen. I’m so sorry for the situation you’re in. I’ve had to just deal with the symptoms as well as possible. I wish you the very best. Pain management isn’t for everyone. But I felt like, to a degree, it gave me my life back.

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weinham007 | @weinham007 | Sep 17 1:54am
In reply to @harley22 "I have same as you described. So bad sometimes I can’t walk either. Everyday I have..." + (show)
Profile picture for harley22 @harley22

I have same as you described.
So bad sometimes I can’t walk either.
Everyday I have pain,and I take Tramadol and Ibuprofen.
Gabapentin and nany of other drugs did not help me.
Will behaving Rituxan infusions in few weeks Andi hope it will help me.
Right now thenumbness has gone up to my right hand, and I can’t write with a pen.
Hard for me to even sign my name!
Letshopefor a drug that will help us

Jump to this post

Can you tell me what Rituxan infusions are and how they might help?

Thank you!😊

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