Post Stroke Recovery

Posted by janie1gypsyy2001 @janie1gypsyy2001, Jun 26, 2024

I had a Hemorrhagic stroke in 2017, Went into kidney failure, was placed in a medical coma for over a month to allow for healing.
While in a coma and on a Ventilator, my family was informed by physicians, that very few recover from this situation. They were encouraged to remove all life sustaing measures and let me go. My family refused to give up on my chances to recover. I came out of the coma with Left Hemiplegia, and memory issues. I spent 7 months in institutionalized care. A stroke specialty facility, then to Rehab, all this from Jan to August before, being discharged to home. It has been difficult, but with Home Health Therapy, I have progressed to the point of walking w the use of a walker. I exercise every M,W& F. I use my recumbent exercise bike Monday- Friday, 5 days weekly x 30 minutes. There seems to be no support for a walking/talking stroke survivor in my area. Is anyone able to offer direction for resources? I am in Lakeland, FL.
I would like to talk w other stroke survivors!
I would like to continue to progress!

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

I was left with issues finding words sometimes, some tremor in left hand, and I was still working, retired in June. Would find myself opening wrong file, or hitting keyboard issues. Adapted, but do feel so blessed. 6 months in got stroke fatigue, so napped often and could drive short distance only. My job was 2.5 hours away, part hybrid. Prayers for strength, the walking took so much time but it got better, loads of effort on my part.

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Profile picture for mb0926 @mb0926

Had three strokes in cerebellum, balance and walking were issues but over came it. No answers why for me about how this happens.

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Overcoming the walking bit is a good sign. I have been out of hospitalizing for two days…today is second day at home. I have been in communication with caregivers. I am getting walking in better. I have a cane but don’t really need to use it as much, just to carry around now. I take small walks. I was able to walk down and up 60 stairs in my apartment…I live on the seventh floor. I did it slowly but was able to walk. That was an accomplishment.

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I had a hemmoragic stroke at the end of March this year 2025 I'm looking for anyone who has gone through this with the right side (head to toe) numb. Recovery? What helped. Any advice or suggestions. I cry alot (knowing why & not knowing why) I'm looking for help and understanding what might happen. Thank you

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Profile picture for wendykd @wendykd

I had a hemmoragic stroke at the end of March this year 2025 I'm looking for anyone who has gone through this with the right side (head to toe) numb. Recovery? What helped. Any advice or suggestions. I cry alot (knowing why & not knowing why) I'm looking for help and understanding what might happen. Thank you

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Hi, @wendykd - Sorry to hear you had a stroke this past spring and your entire right side is numb now. It does not seem at all unusual that you'd have great disappointment leading to crying with having feeling in your right side one day and not the next.

I had a totally different medical situation with a neuroendocrine tumor found in my first ever colonoscopy, followed by a ton of testing for any other appearance of cancer in my GI tract or elsewhere two years ago. I would start crying at what felt like random times when something brought up my abject fear of more cancer being found.

Wondering what medical treatment you have undergone so far since the time of your stroke, wendykd?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @wendykd - Sorry to hear you had a stroke this past spring and your entire right side is numb now. It does not seem at all unusual that you'd have great disappointment leading to crying with having feeling in your right side one day and not the next.

I had a totally different medical situation with a neuroendocrine tumor found in my first ever colonoscopy, followed by a ton of testing for any other appearance of cancer in my GI tract or elsewhere two years ago. I would start crying at what felt like random times when something brought up my abject fear of more cancer being found.

Wondering what medical treatment you have undergone so far since the time of your stroke, wendykd?

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@lisalucier just therapy for speech OT and PT I'm trying to find out from others what might have worked for them. I can't get to a group meeting . I hope you are doing better and continue with what is working for you. I'm not familiar with your situation

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Profile picture for wendykd @wendykd

@lisalucier just therapy for speech OT and PT I'm trying to find out from others what might have worked for them. I can't get to a group meeting . I hope you are doing better and continue with what is working for you. I'm not familiar with your situation

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@wendykd - thanks for thinking of me. I'm actually a moderator on Mayo Clinic Connect. Though I've had a few health conditions over the years, I've not had a stroke.

I moved your post to this discussion on post stroke recovery so you could chat with others here any what has been particularly helpful in their own recoveries. Please meet @djs2023 @kybamerica01 @scottrl @sally12345 and others.

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Profile picture for wendykd @wendykd

I had a hemmoragic stroke at the end of March this year 2025 I'm looking for anyone who has gone through this with the right side (head to toe) numb. Recovery? What helped. Any advice or suggestions. I cry alot (knowing why & not knowing why) I'm looking for help and understanding what might happen. Thank you

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@wendykd

Hi, I had a bleeding stroke when my meningioma bled. After the successful surgery to remove the meningioma, I was discharged to a stroke rehab facility and from there, went home. I learned that actually one is likely to recover more completely from a bleeding stroke than a ischemic stroke. That’s the good news. But it took me 18 months to recover as much as possible with OT and minimal speech therapy. Early on, I could tell that my executive functioning wasn’t quite right and my emotions were unstable. I complained and a therapist told me this was normal with stroke survivors. (They gradually improved. ) Physically my left side was affected and although I am naturally left-handed my left hand is not now so good as my right hand. From my experience you are not done with your recovery. And it will continue to get better. Best regards to you

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Profile picture for methel @methel

@wendykd

Hi, I had a bleeding stroke when my meningioma bled. After the successful surgery to remove the meningioma, I was discharged to a stroke rehab facility and from there, went home. I learned that actually one is likely to recover more completely from a bleeding stroke than a ischemic stroke. That’s the good news. But it took me 18 months to recover as much as possible with OT and minimal speech therapy. Early on, I could tell that my executive functioning wasn’t quite right and my emotions were unstable. I complained and a therapist told me this was normal with stroke survivors. (They gradually improved. ) Physically my left side was affected and although I am naturally left-handed my left hand is not now so good as my right hand. From my experience you are not done with your recovery. And it will continue to get better. Best regards to you

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@methel Thank you so much for reaching out. You are exactly what I was looking for although I hate that you've been through so much. I appreciate you replying. I hope everything is going as well as it can for you and that you are happy. Thank you so much

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Hi.

Sorry to hear of your stroke.
Definitely a life-changing event.

But please don't despair. There is life after a stroke. It's been nearly seven years since mine, and I'm hanging in there.

In fact, I've recently had several of my "Dad Jokes" broadcast on local TV. I never saw that coming.

I have a YouTube channel that chronicles my recovery and what I'm learning along the way:
https://m.youtube.com/@srlucado/videos
Remember, nobody can do your recovery for you. You have to stay with it. But it's worth it!

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