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Small Intestine Bacteria Overgrowth (SIBO)

Digestive Health | Last Active: Nov 4 7:21pm | Replies (477)

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@kanaazpereira

Hello @galy and @jmmb,

I'd like to extend my welcome to Connect; we're so glad you've joined this group.

I see that @saucy has shared some insights (thank you), and I encourage you to read through the past messages of this discussion thread, where you’ll hear about the experiences of @doron @lighthouseceliac @jacque6977 @decosmo @lizbee78 @melaniewa @janovr @azdrew @haighsue and others. Many of them have talked about diet, including the FODMAP diet and specific carbohydrate diet (SCD).

Since diet plays a significant role, I'd also encourage you to view this conversation, https://connect.mayoclinic.org/discussion/leaky-gut-constipation-and-gluten-free/ and I'm tagging @alina151 @jacquelinek1956 @clemlaa who have shared their experiences with SIBO.

Although it focuses on IBD, you may be interested in reading this clinical update by one of the Mayo Clinic gastroenterologists:
"Small intestine bacterial overgrowth is common in Crohn's disease patients who have undergone ileocecal resection or have strictures, fistulas or reduced intestinal motility. Ileal resection and Crohn's disease itself also prevent bile acids from being reabsorbed completely into the enterohepatic circulation, with resulting secretory effects in the colon. Mayo Medical Laboratories recently developed an assay for bile acid in the feces. Until now, a diagnosis of bile acid diarrhea has been provisional and treatment has been empiric." http://www.mayoclinic.org/medical-professionals/clinical-updates/digestive-diseases/management-of-refractory-ibd-starts-with-excluding-patients-who-dont-have-it

@jmmb, you mentioned MALS, so I'd like to ask one of our mentors, @kariulrich if she may have some insight as well?
@galy, I read your message in another discussion thread, and just wanted to let you know that I truly admire your positivity. Have you had a chance to visit the Lung Health group, https://connect.mayoclinic.org/group/lung-conditions/ on Connect?

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Replies to "Hello @galy and @jmmb, I'd like to extend my welcome to Connect; we're so glad you've..."

Thank you Pereira....I am reading with interest and empathy many of the comments others post...
From my brief experience diet and medication is controlling my SIBO but not negating it.
I am on Phase 1 of the SIBO diet of Nirala Jacobi (which I adhere to religiously except coffee and a bit of lactose free milk in it) and have done the antibiotics protocol twice (Rifaximin and Neomycin) and for my lack of motility so have tried all types of prescription drugs which have not worked....and will go alternative soon to see if that might do something...
I have a saying which helps me (I made it up)...I live life as through there is no solution yet I strive for a solution at all times.
This helps me cope with the daily life and get on with it...but never to strive for what might be.
I exercise nearly everyday which helps me focus and I do crafts to help me calm. Its really multidisciplinary.
I suffer boy do I suffer, I cry and I smile...
If any one of your mentors might have insight on Stomach paralysis or lack of motility I would be so grateful
And I would be happy to share limited insights as a patient with "pleasure" - I would prefer to share a drink with pleasure
Smiles
Galy

I have no experience with gastroparesis, but I followed a young person's blog who has it and there is a gastric pacemaker that some doctors place in patients. I gathered that you need surgery to change the batteries every year or two and it's not a perfect solution but it offered her some relief for longer spells. The doctors at Cleveland Clinic place these pacemakers in children, don't know if there is a Mayo solution for adults, but worth asking about??
I am sorry for your suffering and wish you the very best and lots of courage. This is a good group for sharing ideas.

Hi @galy,

We have a few recent discussions on gastroparesis which might interest you:
https://connect.mayoclinic.org/discussion/hi-all-does-anyone-else-out-there-have-gastroparesis/
https://connect.mayoclinic.org/discussion/linz-procedure/?pg=1#comment-65753

I would like to invite @nanny23 @danybegood1 @delicht @jlfisher56, @robatk17, @katmandoo @dandl48 @ryman @lizwhite80 @jafd, to this discussion as they have mentioned gastroparesis and/or esophageal issues on Connect, and may have some ideas about diets and foods that help. I'm also tagging one of our Digestive Health's mentor, @kdubois, to see if she has more insight.

Galy, I adore what you wrote: 'living as if no solution'. This is so interesting and profound to me and strikes a chord resonating inside me. Being an over achiever is interesting, I try with all my might to get well and my mind goes down slopes and keeps sliding down tunnels to get myself well and It's not a healthy wholeful way to live. For me I have a framework I like to live my life by: eat for nutrients, sleep and exercise and expose my brain to things that make me feel peaceful, laugh and learn. I cannot obsess for the solution. It's absurd to think I can begin to know how complex a body works so mysteriously. All I can do is listen to any symptoms (without obsessing) and stick to my framework then let everything else go and enjoy the life in front of me. <3. Thanks again for sharing your thoughts they have really helped me.

And my experience with stomach paraylsis and constipation was frightening but it seems all over. When my health declined and gut issues blew up I had severe gastroparesis and doc wanted to put me on meds whose #1 side effect was it could stop your heart. I hesitated because I didn't have gastroparesis my whole life it had just started. So I decided to be strict on diet and see over time what happened. My naturopath said it could take 6months to a year or longer to heal and she was right. Whether I had SIBO, parasites, candida, histamine gluten intolerance, mast cell activation issues, other bad guys in my gut and lack of good guys, it didn't all matter I was sick from multiple factors and had to be very basic. Getting the right supplements and food in place was a tricky game but seems one year later my gut is running fast (no gastoparesis bloating belching or constipation). eating was strict on Elaine Gotschalls SCD diet (she was scientist who came out with diet in 1950's to heal her sick daughter). Before i found this I kept getting sick again and it was clear even 'what looked to be okay foods for me' like rice and potato were indeed beyond my ability to digest. Elaine was right. Once I gave up the hard to digest starch molecules my gut worked better. What seemed to help me the most was eating 24hr homemade SCD yogurt. My gut got much stronger eating this daily. The next piece of the puzzle was mayo figuring out I had issues with mast cells in my gut and I learned about histamine intolerance. Now I follow my five hand rule: no sugar, no wheat, no preservatives, limited specific dairy items, foods low in histamine and I am finally thriving.