Small Intestine Bacteria Overgrowth (SIBO)

Posted by jacque6977 @jacque6977, Feb 22, 2017

My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?

Interested in more discussions like this? Go to the Digestive Health Support Group.

@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

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It was $27-$28 for 30 tablets. The maintenance dosage is 1 tablet/day. Intensive treatment is up to 3 tablets/day. I started with one, and that seems to work for me. Hope it brings you some relief.

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@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

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ANYTHING is worth trying at this point. I am on day 12 of being drained and dizzy. I believe my vitamins are totally depleted. The pro-bio I am trying to really harsh (small white tablets that are hard to swallow). I am on the 14 day challenge with Activia, but soon want to start maintenance tablets. Thanks for sharing. BTW, Herb.com had a better deal.

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@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

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Please don't eat activa, worthless and full of sugar!

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@jacquelinek1956

I am totally new to this issue, even though I have suffer and been "treated" for acid re-flux for years! Now I wonder if I ever had acid re-flux! When I accidentally found out (my gastro. nurse said I had it, two days ago), I started to read about it. Apparently, the re-flux meds totally upset the whole system and may be what has been giving me such episodes. Apparently, my gastro has known, but did not share it with me? I would have stopped the reflux meds back in January!! I am beginning to believe there is NO DOCTORS in my state that really care! At this point, I am not sure WHERE to start. I did call and FINALLY got new script for XIFAXAN, but can only afford, week by week, the 14 days supply, will it help or not? Second, I am not sure what I should and should not eat, I read about the Align Probiotics, so I will start those soon. ANYONE who can suggest ANYTHING at this point would be wonderful! Thanks in advance...JK

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Hello @jacquelinek1956 and @sweetmaize,

I apologize for the tardy welcome, but I wanted to let you know that we are so glad to have you here, on Connect. And a sincere thanks to the members who have jumped in with such insightful conversation!

You may also wish to view this discussion, Relentless bile reflux / pain, http://mayocl.in/2sJuOeB, where you will meet @alina151 who has posted about SIBO

@tzm1995 @zwar @gfamy @fa7100 @gregoryd @melaniewa @jwatch @momochan @janovr @lateacher @azdrew @vwerner, and @haighsue, do you have any suggestions for @jacquelinek1956 and @sweetmaize?

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CAN SOMEONE PLEASE HELP ME! I NEED THE TEST KIT FOR SIBO, I HAVE BCBS BUT CAN'T FIND ANYONE THAT TAKES MY INSURANCE. I AM DIDABLED AND CAN'T AFFORD TO PAY THE OUTRAGEOUS PRICE FOR THIS TEST! I LIVE IN FLA AND MY DR CAN'T FIND THE KIT ANYWHERE@! PLEASE HELP!! I AM AT THE END OF MY ROPE!!!

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@rubyric

CAN SOMEONE PLEASE HELP ME! I NEED THE TEST KIT FOR SIBO, I HAVE BCBS BUT CAN'T FIND ANYONE THAT TAKES MY INSURANCE. I AM DIDABLED AND CAN'T AFFORD TO PAY THE OUTRAGEOUS PRICE FOR THIS TEST! I LIVE IN FLA AND MY DR CAN'T FIND THE KIT ANYWHERE@! PLEASE HELP!! I AM AT THE END OF MY ROPE!!!

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Here is the name of the lab that did my test, maybe they can guide you: Commonwealth Laboratories, LLC. They are located in Belfast, ME 04915-4033. Here is a number listed on my "billing", but they might also be able to help: 978-599-1380. I would try that number and ask for customer service. I have to warn you, without insurance, my bill would have been $6,540.80. I ended up paying 108.79. We lost our insurance two months back and now we are trying to get another company. My gastro doctor had the kit in his office, so I am not sure how much help I can give you.

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@rubyric

CAN SOMEONE PLEASE HELP ME! I NEED THE TEST KIT FOR SIBO, I HAVE BCBS BUT CAN'T FIND ANYONE THAT TAKES MY INSURANCE. I AM DIDABLED AND CAN'T AFFORD TO PAY THE OUTRAGEOUS PRICE FOR THIS TEST! I LIVE IN FLA AND MY DR CAN'T FIND THE KIT ANYWHERE@! PLEASE HELP!! I AM AT THE END OF MY ROPE!!!

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Commonwealth went out of business, thanks anyway.

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CAN ANYONE TELL ME "WHAT TO EAT???" I am so tied of hearing "eat this, no don't, eat that, OH no that bad for you".....no one seems to know what diet to follow. The FODMAP diet is a joke!! Half the stuff on there I can eat due to my re-flux and the other half is horrible! I know to avoid sugar (SIBO) and acid foods (re-flux), so what's left?? I am going to try the gluten free for now UNLESS someone clues me in on another way to go....so frustrated!!!

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