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Has anyone transitioned from Tacrolimus to Everolimus?

Transplants | Last Active: Sep 14 8:13am | Replies (6)

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Profile picture for jackie421blfdgurl @jackie421blfdgurl

Hi girl....i was on tacrolimus first dr. Wanted to change me to sirolimus due to stopping any problems with the kidneys..so went on Sirolimus but after 3 months soars in mouth reappeared. and this june back on tacrolimus..but having the hair problem..dr.wont let me tske less than what i am taking...i am not happy.i am going to a kidney dr to manage my numbers from my blood test.....so it is being monitored.....we all have a tough road to go down....but we r tough!!! Big hugs to u too....

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Replies to "Hi girl....i was on tacrolimus first dr. Wanted to change me to sirolimus due to stopping..."

Hi, Jackie @jackie421blfdgurl - It' great to hear from you! So sorry that the medication switch to Sirolimus didn't work for you. So now you are back on Tacrolimus, that's what I've been taking since my transplant, and I also experienced hair loss which had corrected itself after 9 - 12 months. The dermatologist in the transplant dept said I could try Biotin (I forget the amount) and that along with gentle shampoo helped my and my fingernails to return to normal.

Others have also struggled with hair loss. You might want to check out these discussions:
- Hair loss after transplant, probably Tacrolimus: Anyone change meds?
https://connect.mayoclinic.org/discussion/hair-loss-after-transplant-probably-tacronlimis/
- After transplant I have hair loss due to meds: Will it come back?
https://connect.mayoclinic.org/discussion/has-anyone-transitioned-from-tacrolimus-to-everolimus/
You got this, Gurl!