Just diagnosed with stage four kidney disease: Need encouragement

Yes and it seems to be Helping...GFR went from 28 to 30
However, I am also on a stict diet
1500 MG Pot
2000 Mg Sod
2000 MG Phospherous
135 Gram Carbos
.60 Grams of Protien based on Wieght in Kilos
I hope this helps

@njwrstlr Congratulations thats wonderful.

Please drink your water. It really has helped me. Listen to these wonderful people in this group. They have helped me so much reading their advice. I was freaking out when I found out but this group has eased my mind to live your life and Please follow their advice. Bunches of hugs and prayers.

Good for you and thank you for diet information. Since you are on a special diet, how do you know hydrogen water is a contributing factor? I'm not knocking it, if your combination works, I wouldn't change a thing. I'm just curious if you used hydrogen water alone, and you noticed a difference. Thank you.

Thank you. When I was working, I had one of those huge Q trip cups with water and must have drained it at least three times a day. It was with me wherever I went. It got so, especially in a meeting, that people started teasing me about it, all in good fun. After retiring I had a heck of a time drinking water. I understand how important water is, it is so important that I wish that doctors and health workers stressed it more and most importantly dietitians should stress water as part of the kidney diet.

I understand and I feel so water logged at times. Lol

Yes, Hydrogen water alone even in my tea....diffent difference.
If you are going to buy one make sure to get tith at least 5 PPM (parts per million)
Luck

Water is extremely important in keeping eGFR in check. But! I was drinking too much water, 70-90 oz a day. My sodium levels dropped to below normal levels. My Nephrologist said to keep water consumption to 60 oz a day. That's 2 liters. My eGFR is 21 and stable. Just saying there is a balance for everything.

Thank you for the advice on the hydrogen water. Hopefully, it will be beneficial for me. I could not find anything to indicate that it could be harmful and I understand it tastes good.

I am exactly in the same boat. A couple months ago the lab I go to starting sending test results to me as well as the doctor. That was when I first saw my EGFR and I went into panic mode. Scared the heck out of me. When I went to the doctor, most of the time I would see a nurse practitioner every three months and the doctor every six months. When I would go to my appointments we'd go over the lab results and the doctor and nurse practitioner would go over creatinine, potassium, phosphorus, etc. All the things that contribute to the EGFR count but never talked about or even saw my EGFR. Everything was excellent and within normal range. My last stage was 3 so I thought I was still at 3. In actuality, I am well into stage 4 and very close to needing a transplant or go on dialysis. I may be remiss in not specifically asking about it but when everything was was in the normal range I didn't think to ask. The only time there was a serious problem was after I had COVID, my blood test apparently went haywire and my doctor said it indicated that I have Leukemia. I had another blood test two weeks later and it hadn't changed. He sent me to an oncologist, two lab tests later everything went back to normal. The doctor did not agree with me but I thought the blood tests got screwed up because of COVID. At any rate I wonder that when the doctor said it all went back to normal he meant that it no longer pointed to Leukemia but that my stage changed from 3 to 4 at that time. At this point, it would be guessing and nothing concrete. I also had to change doctors at that time and with the new practice I saw a different nurse practitioner at just about every appointment. I'm sorry, I did not mean to tell you my life story but what I have learned from all this is that I cannot trust the doctors or nurses to keep me informed of every step of my disease. That I need to stay on top of all my lab results and learn to ask questions. In conclusion, the thing that makes me angry is the lack of information when I first learned I had CKD. The way I found out I had CKD was my doctor's office clerk calling me to tell me I needed to make an appointment with a Nephrologist. In my ignorance I had no idea what type of doctor a that was. I asked the clerk why I was being sent to a Nephrologist and her response was, I don't know. I asked to speak to my doctor and was told she was not in the office. I looked up Nephrologist on the web and read the good news. Anything I have learned about CKD was on the web. The first Nephrologist I saw gave me a general idea of what it was, what to expect. And a hand out on what foods to eat and what to avoid. That was it. I read as much information as I could on the web. From my research I found that I had a lot of questions that I should have written down for when I had an appointment, instead I thought I would remember to ask the doctor. What actually happened is that my mind went blank trying to understand what she was telling me at the time. I have had about 5 different doctors both male and female. There was no discernible difference from one office to another. The doctors always seemed in a hurry if I started asking questions they had one hand on the door ready to exit. Not every doctor behaved like that but most did. As Hippocrates said, "if you are not your own doctor, you are a fool". I don't think I would go that far but I think that we need to depend on ourselves for the things we need to know. Some through research and going to classes that most towns/cities have for learning about CKD.