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Profile picture for gamaryanne @gamaryanne

Oh my. This is a difficult situation indeed. I hope that you feel confident with the team that is caring for him and advising you. He has really had a tough month and you, too, as his caretaker. Please take care of yourself and find ways to get rest.

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Replies to "Oh my. This is a difficult situation indeed. I hope that you feel confident with the..."

@gamaryanne Thank you. I have been fortunate - despite the driving, running around and living in hospitals I have not been ill much over the last 22 months - a couple of colds that lasted a day or two and a few short-lived vertigo attacks. Doctors were getting worried about my husband yesterday and it was devastating for me. But they extubated my husband and the man managed to breathe with a little help! His vitals remained stable and/or improved after extubation - I think the tube was causing him alot of stress. He then asked that I take him home immediately because he believed he as not going to get well. That broke me. This morning I went to the ICU expecting the worst and miraculously he turned a corner - vitals improved and stabilised and bowels moved. He is not out of danger but small wins. Cancer has grown in the peritoneum without chemo but that is not something we can do anything about at this time. If I could do it all again I would have skipped radiotherapy but it is the standard of care and it works for many people; it just did not work on my husband and caused him life-threatening issues.