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Non-Length Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Sep 12 5:17pm | Replies (161)

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It has plateaued but I still have left face pain, burning mouth and left hand/arm burning and stinging (occasionally right hand/arm, too). Pain score of 2-4 out of 10 pretty much every day. Keeping my fingers crossed it doesn’t get worse. It has been almost five years since the onset. I now have episodes where I get sweaty all of sudden but at least it is not painful. The buzzing is almost gone. I never know where and when I will get the symptoms. I hope you are feeling better. Good news is I have not gotten worse. Stay positive!

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Replies to "It has plateaued but I still have left face pain, burning mouth and left hand/arm burning..."

Hi I’m taking nortriptyline now and my symptoms have slowly improved with fluctuating symptoms. Not sure how much it’s the nortriptyline helping or my neuropathy is improving. I’m in a lot better place now than I was a year ago. I’ve changed my lifestyle. I don’t drink alcohol anymore and I find drinking lots of water staying hydrated makes a difference to my symptoms.