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Non-Length Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Sep 12 5:17pm | Replies (161)

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I am 30 and we have a similar situation, how are you doing now?

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Replies to "I am 30 and we have a similar situation, how are you doing now?"

So much has changed (progressed unfortunately) with my disorders & it’s become quite frustrating to say the least….I was recently diagnosed with trigeminal neuralgia in Dec 2024 along with dermatomyositis, and let me tell ya - the winter time is especially HORRIBLE! I couldn’t even have the heater on my car blowing on direct heat, and only on defrost on low because the tingling/burning sensations on my face were excruciating & I’ve also learned that this heightened sensitivity has also caused so much havoc with the ceiling registers in the house and even vibrations in the car when I drive, which my neurologist said I kind of have the worst of both worlds going on with the Tri N and SFN when it comes to that. At some point over the past 7-8 months, I’ve developed some type of advanced infection that my GI suspects is some sort of systemic involvement with bacteria and yeast, so has referred me to an infectious disease provider…just waiting on the call to schedule the appt & hoping that maybe those were compounding my issues with the SFN and Tri N and this winter won’t be so bad, but not sure yet. How are you doing!? Would love to hear more of your story - feel free to private message (if that’s a thing?)