I am afraid the pain will never end.

You are welcome!
We have your back, we understand. Unfortunately, my "rheumy" did not always understand but I shared with her the best I could. I was polite and warm in my feedback but I came with questions and comments to each appointment- written down and told to the assistant who came in first for BP...
The doctor didn't have PMR so it was difficult for her to understand that everyone is different.
She said I was her only patient who tapered 1/2 mg a month instead of the 1 mg a month. She was slightly shocked that I did this and did it on my own. I could not tolerate the full 1 mg drop. Sometimes I even stayed longer than a month on my taper.
We have to educate the doctors too although they have the up to date information, know the right tests to perform, and so on. It's a partnership the way I see it.
Courage in the struggle.

Are you, by chance, taking and brand of Statins (for high cholesterol)? You might want to consider not taking them for about a month. If your muscle pain goes away, then you probably shouldn’t be taking statins.

Thank u for that idea. I used to take statins but have not for about a year and a half now - well before the pain of PMR hit lat January.

Something I'll add after 2 years on this roller coaster is that I eventually did find some positive emotional growth as a result of all of the pain and agony. These days I value my friendships even more, I'm extraordinarily grateful for just feeling "normal", and am starting to consider the whole slog as an unrequested training for being older. It's not easy, but I'm trying to practice grace.

I respect that very much.

Well said and I have similar experience.
Thank you

"I eventually did find some positive emotional growth as a result of all of the pain and agony."
-----------------------
These are my sentiments after many years as I adjust to being off prednisone and in a sustained remission. When I was stuck on prednisone and couldn't taper off I was irritated that prednisone and all the side effects was my fate for the rest of my life. My quality of life wasn't very good. I looked forward to having a word with a higher power whenever I got the chance. I was going to demand an explanation for all the pain because I didn't know what I was expected to learn from it all. I thought the pain was unwarranted and unnecessary.

Now my outlook on the rest of my life has changed. I'm at peace that everything had some meaning. Things have turned around even though I can't really explain the meaning of the past. Things turned around when I had an encounter with a person who had an adrenal crisis and was in a coma. She claimed that she was sent back for some reason. It gave her some meaning to explain things to me so I would not have the same fate. She said that I needed to preserve whatever adrenal function I had left before she died. It was her grace that I currently aspire to.

Wow. I do not say that flippantly. God bless.

Thank you for sharing . I hope everyone who has/had PMR reads this. It’s so important we are not alone.
🙏🤞

True story! The following documents my state of mind in 2018.
https://www.healingwell.com/community/default.aspx?f=16&m=4073463