Help with post surgery symptoms baffling docs.
My husband had an esophagectomy on April 23rd of this year. He spent 2 1/2 months in the hospital post-surgery due to some complications with fluid buildup and slow closure of the new conduit attachment. He'd had a bad hiatal hernia diagnosed in September last year and during that surgery, they found the cancer. So, the stomach tissue was not viable as a new esophagus - his descending colon was used.
He's been home for 2 months on the feeding tube and his weight is stable. He does eat a bit but has no interest or appetite. But since his discharge he's had almost daily, sometimes more, bouts of retching and spitting up foamy stringy what looks like phlegm. It's been particularly bad in the last week. It may or may not follow eating. Today it was upon waking.
Yesterday at our monthly appointment, the doc suggested since this is always preceded by lots of coughing, that it could be some kind of pertussis. There is never food evident in what comes out - it's yellow and slimy (sorry). I'm just wondering if anyone else has had this same issue.
Thanks
PS - we do have a barium swallow test and an esophagram scheduled within the next 2 weeks.
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Wow. Thx for the thorough response. Are you a doc? My husband is a veterinarian so I'm sure he'll understand this better than me. Wow. Really....thank you!!
Hi. Yes, I had this briefly. Scared the hell out of me and the stringy mucus almost formed a shape.
Mine was at the 1 1/2 yr mark roughly and I'm sorry but I don't remember what we did about it. I do know that it passed and bed elevation helped. The surgeon was not concerned, he said that we normally produce a lot of mucus and our redesigned system was unable to stop it coming up now without the necessary valves.
My husband had an esophagectomy last December 18 and was in the hospital for 6 months due to leaks and strictures. He was coughing and bringing up mucus and throwing up. He is home now, and although it has gotten somewhat better, he had a dilation and stent put in. They keep telling him it’s just a matter of time before it stops. I hope they’re right.
Thanks for posting. Did he have his colon used or stomach? My guy is in the hospital now after having been discharged in late June after 2 months in hospital post surgery. He had leaks too. He did pretty well the first 2 months honestly till the coughing and retching was getting out of hand...same deal, mucous, bile etc. He was admitted from the ER to get a definitive diagnosis and plan in place. The barium from the first test has not completely left his body so until that happens he cant have the endoscopy. The doc thinks that will tell them more. Ugh...at least I see on this platform that most survive the surgery. It's just a long haul and everyone's journey is unique.
Yes everyone’s journey is unique, but the common thread is,it is hard for the patient and the caretaker.
My husband had his stomach used as the conduit, but processed to get holes in his stomach that took months to heal. After it healed he had strictures and needed to be dilated and a stent put in. He is finally eating now, but with the coughing a mucus build up, his nutrition is not adequate so we have returned to j- tube feedings on as needed basis. He has lost 40lbs. Hopefully we can turn it around with smaller tube feedings and some food.
I am wondering if others have the coughing and mucus problem as well and how long it lasts.