← Return to Treatment options: radiation without ADT?

Discussion
jcultra avatar

Treatment options: radiation without ADT?

Prostate Cancer | Last Active: Sep 11 6:06am | Replies (66)

Comment receiving replies
Profile picture for dailyeffort @dailyeffort

When I was in your position I asked to have the various treatment options and likely outcomes explained to me. I was given links to the NCCN Guidelines and recent studies supporting each of the treatment options available for someone my age in a similar physical condition/life expectancy having the same NCCN category/Gleason score and confounding risk factors (IDC, Cribriform, EPE and .52 Decipher score, in your case). This made it possible to evaluate, for each treatment option, the median time to biochemical recurrence, cancer specific mortality and overall survival data. I could then weigh potential short term side effects during and/or after each treatment option and compare it to life without short term side effects due to treatment, but a much shorter time to the side effects which would likely result from untreated biochemical recurrence or the treatment of biochemical recurrence.

I walked in your shoes nearly 4 years ago when diagnosed with Gleason 9, EPE and cribriform. It was a frightening time to have to reach decisions that would dictate the quality, potentially both short and long term, and duration of life. The multidiciplinary team of doctors I met with at Fred Hutch/UW in Seattle provided the studies, data and links I needed to reach my decision to have RT (I chose to have proton) with 2 years of lupron + abiraterone. I had side effects many of which lasted approximately a year after completing ADT, but they certainly weren't debilitating. I continued to work as a contractor and we hiked, xc skied, mountain biked and kayaked with friends through the two years of treatment, although somewhat less frequently.

In the absence of comorbidities that would complicate your treatment decision, I hope that you have the data the doctor used to reach the conclusion that "the probable side effects and not worth the potential benefits." It is your body, your life and your choice. I hope you will continue to post so we can all continue to learn from and support each other. Wishing you continued success and happiness on your PCa journey!
Bill

Jump to this post


Replies to "When I was in your position I asked to have the various treatment options and likely..."

Thanks for your response. Coincidentally Fred Hutch was one of the centers of excellence I sought treatment from and they were fantastic! I ended up at Providence in Portland mainly because they offered MRI guided SBRT vs MRI informed. Additionally, I felt the radiologist in PDX had more experience coming from Mayo…..but certainly nothing negative about Fred Hutch at all. Bottom line came down to risk vs reward and I’m still OK with my decision but understand time will tell. Thanks again for your very well written and informed reply. Bill