Omg! So 50% of us are suffering from AIMSS! When I first took Anastrozole I used to feel like the little mermaid who traded her hair for a pair of legs, especially in the morning. Every step was so painful. I had to walk in pain for 10 mins before the pain went away. I quit anastrozole and felt better with Exemestane until the petechiea. I had no idea that we are genetically predisposed to AIMSS. You’re right, doctors wouldn’t tell us, but probably because they haven’t read this report.
Your side effects are so extreme that exercise is not going to help much! You’re a strong person and you shouldn’t feel guilty about something that you have no control of. How many people can tough it up as long as you did?

If you had chemo, then not taking AI is probably ok. I think chemo is more effective in killing rogue cancer cells. Then again it’s just my feeling. I'm not a doctor.

Thanks for the information about AIMSS.