I’ve had PMR since last September I’m currently on 7.5 mg prednisone.

Hi
Your diagnosis of PMR and treatment is going to be unique to all of us. Remember prednisone is doing the job of the adrenals/cortisol. PMR can burn out at some point as well. Tapering will absolutely vary with individuals. My own experience is I was pain free on 2mg and now that I’m completely off the drug for 2 months, I contend with aches and pains daily but nothing that keeps me in bed or doing my usual routine. I need to nap every afternoon however. I’m managing my PMR more successfully with an anti inflammatory diet, exercise and use of an infrared sauna almost daily. I’ve also begun a routine with Ayurveda under supervision. It’s all helping. It was tempting to go back on the prednisone but being aware of long term use/side effects, I chose an alternative approach. This too will vary for each of us. I wish you the best in your journey towards health and wellness.

I took my 3rd Kevzara injection today and dropped my Pred down to 10mg. My Rhumatologist has me dropping sky dose down every two weeks when I give me a Kevzara injection down 2.5 mg. So far so good. I have had no side effects so far.

Can you tell me how its going with the kevzara? I will be starting it very soon. Currently on 10mg of prednisone but still having quite a bit of pain and lack of ability to reach for things without significant pain. Feeling hopeful.

I am interested in how you are managing your PMR and have started looking into the infrared sauna blanket. (I can't afford the full sauna set-up). Can you tell me about your experience with infrared therapy, how it effects inflammation/pain relief? Thank you.

Hi,
I’ve just begun using the infrared but I do feel much better after a solid 30 to 40 minutes.
I do not know about sauna blankets but do your research. I have done so with saunas and they do vary.
Here is an overview of benefits I will quote.
“Infrared saunas are a safe adjunctive therapy for polymyalgia rheumatica (PMR) that can help alleviate pain, reduce stiffness, and improve overall well-being by increasing circulation and reducing inflammation. Infrared heat directly warms the body, which can promote healing, relax muscles, and increase cellular ATP production. While not a replacement for medication or exercise, regular use offers significant, short-term pain relief and improves quality of life, but consulting a doctor before starting any new treatment is essential.”
Light, heat, colour therapy, Tai Chi, Qi Gong, meditation, Yoga, diet and lifestyle is critical in my opinion. We are living in the age of technology and the information is easy to research but be circumspect in this endeavour.
Yes, I have had relief in my muscular pains and aches. But this is in adjunct with some supplements which will vary individually. Perhaps you might wish to seek out Functional Medicine where “East meets West”. But do so with the utmost of care and trust in those who would make claims in helping restore health and wellness.
Kind Regards.