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Immune Thrombocytopenia Purpura (ITP): What helps?

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (203)
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I found a hematologist that was very knowledgeable on Von Willebrand disease!

The normal Von Willebrand panel I wouldn’t test positive for due to having my spleen removed so, these were the blood test he did>
•Chromogenic Factor VIII Activity Assay, Plasma
•Von Willebrand Factor Activity, P
•Von Willebrand Factor Ag, P

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Replies to "I found a hematologist that was very knowledgeable on Von Willebrand disease! The normal Von Willebrand..."
stf | @stf | Sep 20 1:05pm

I’ve had ITP for 25 years. When I was first diagnosed there were 3 main options: prednisone, Ivig, or splenectomy. After about 6 horrible months on prednisone, AntiD research showed good results and I switched to that treatment for several years. (Edit: antiD is no longer available).

I’ve also tried rituxan, which didn’t do much for my counts. Since 2015, I’ve just not treated and counts have stayed between 40-80k.

I’m a candidate for Promacta, but other than when I need surgery my current counts are safe and I don’t treat.

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