Leiomyosarcoma vs pelvic masses and getting a diagnosis

Posted by franklin592262 @franklin592262, Apr 17 12:05pm

Hello, I am here trying to find as much information as possible about pelvic masses... particularly lieomyosarcomas. My oldest daughter just turned 24. She's always had rough menstrual cycles, recently she started having pelvic pain, bladder pressure, bowel issues and rectum pains....then she had groin pain followed by soft swelling in her leg, close to her knee. Her primary MD suspected the leg swelling might be a lymphnode, as it was tender and red. He started her on antibiotics and scheduled an ultrasound. The antibiotics took care of the swelling. The US showed her uterus as unremarkable with large complex pelvic mass... 11 cm... differentials were endiometrioma, cystadenoma or cystsacarcinoma.... please forgive any misspelling here.... the report recommendated a CT for better view because visualization was suboptimal. Her blood work for cancer markers was good. She received the results of her CT yesterday.... all other organs are clear, lungs, liver, etc...bowels within normal limits, etc.... no lymph node involvement....but now this radiologists is saying " worrisome for liemyosarcoma". She has an appointment with her gyno monday. I'm just looking for info on this rare cancer. I'm a little confused about her uterus being unremarkable... I was under the impression the uterus was enlarged with this cancer. I'm also unfamiliar with the term " worrisome ".... I've always seen "suspicious" used in these situations, what does worrisome mean exactly? Any info would be deeply appreciated. Thank you

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Profile picture for jeshaw6801 @jeshaw6801

It's not too late to start chemo. All my tumors have shrunk after 5 cycles of doxorubicin and trebectidin. On on the 6 th cycle now. Then go on maintenance chemo. I'm going to celebrate 74;in October.

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Thanks so much for your comment. One of the doctors leading the treatment plan said he wouldn't recommend chemo to his own father .....strong comment and taken to heart by me. He included quality (or non quality) of life issues for his reasoning. Haven't had any matastices (sp?). No further imaging has been taken. The plan is to do a CT 3-4 months out from surgery. I'm concerned about the remaining pieces of sarcoma and its potential of spreading. PT has been great, strengthening the quad muscles and arm muscles. Pain has been localized to my left hip (no relief yet) and lower back (original complaint to my PCP in December). The MRI taken then showed a mass in my pelvic area.

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Profile picture for chuckeg @chuckeg

Thanks so much for your comment. One of the doctors leading the treatment plan said he wouldn't recommend chemo to his own father .....strong comment and taken to heart by me. He included quality (or non quality) of life issues for his reasoning. Haven't had any matastices (sp?). No further imaging has been taken. The plan is to do a CT 3-4 months out from surgery. I'm concerned about the remaining pieces of sarcoma and its potential of spreading. PT has been great, strengthening the quad muscles and arm muscles. Pain has been localized to my left hip (no relief yet) and lower back (original complaint to my PCP in December). The MRI taken then showed a mass in my pelvic area.

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Hello Chuckeg.....as you are trying to avoid chemo for treatment, have you considered dendritic cell therapy? Immunocine, headquartered in Cancun, Mexico, has been treating cancer patients for several years. Their approach utilizes the body's immune system to train it to attack your specific cancer cells. It might be worth further investigation.

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