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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: Sep 13 11:13am | Replies (291)Comment receiving replies
I am on hydroxurea for 4 months. 500 mg daily last blood work plates were 297 . I have had some side effects non to bad and random. Some burning on my tongue my normal oily hair is now dryer so nothing bad. I take my meds at night and go to bed so I have not been sick at all. My main thing is I am tired but the meds are making my red cells low. I take lots of vitamins so not sure if that helps. No hair loss but noticing more gray hair. Good Luck
Replies to "I am on hydroxurea for 4 months. 500 mg daily last blood work plates were 297..."
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We’re on about the same timeline. I’ve been on HU for 5 months. Platelets were 314 last blood draw-high at 1200. I have had lots of hair fall and thinning. I’m tired but force myself and get thru it with an afternoon nap. Bone pain is real and bothersome as well as dry skin, nails and hair. I’m hoping for a drastic reduction-presently on 500mg 5 days a week, as well as low dose Aspirin. I’m feeling foggy and dry mouth all day long. Can’t seem to keep my weight down either—snacking is my go-to relief for the tiredness, I think. I’m 73, female and also had complete thyroidectomy years ago. So I’m drug dependent! Hope for the best for you! You’re not alone.