I was diagnosed with ET about a year ago and started experiencing leg pain shortly thereafter (8 months ago). I really had no other ET symptoms other than a slightly englarged spleen so I was on aspirin. As my leg pain worsened, I felt like I was bounced between my GP and ET Drs for months. The bones in my legs felt like they were expanding from the inside out in little bursts, this was not neuropathic or nerve related. I don’t think the ET Dr believed the bone pain (which became more and more severe) was related to ET, even when a huge jump in my platelet count correlated to the onset of more severe pain. I started Hydroxyurea three weeks ago, mainly because the leg pain was so severe and nothing was helping. After two weeks, I had a significant drop in platelet count and a huge reduction in the frequency and intensity of leg pain. I have watched the video explaination on this channel. What I am most curious about if there have been are any studies about ET and bone pain or even any surveys of ET Drs and their beliefs about bone pain? I think that if bone pain is not recognized by ET doctors as a real complication of ET there are a lot of us who are suffering unneedlessly.