Surf is UP !!!! @@

Posted by surftohealth88 @surftohealth88, Aug 11 12:17pm

So- here we go ! 😣
The time has FINALLY come, but at the same time "suddenly” ... This Tuesday (tomorrow) my husband is having surgery at noon and according to written instructions he will be released next day to go home.

I am so very fortunate that our younger daughter lives in the same area so she will be giving us a ride and keep me company during procedure, otherwise the surgeon would be forced to put me "under" too 🥴 to stop my crazy pacing through corridors.

We are ready as much as one can be ready, all is sanitized, cleaned, cooked, folded and sparkly and stored in one place so there is no guessing "where the heck is that Senokot" 🙄. My brain is scrambled completely because of the stress and I feel like my fellow posters here that are on ADT - yesterday I called a bookcase "the thing with boards and books" XP.

Prayers and good vibes are welcome : ))), and I will keep you all posted about everything.

I also want to use this opportunity to thank everybody on this forum for every advice and every comforting word that I received since I came here in February (or was it March ?), I can not remember since all of those months are one very loooong blurry day that never ended ....

I will leave you now with a short poem : )) and will post again as soon as I can : ). HUGSSSS to allll !!!

If you believe in fairies,
ask them,
If you believe in God,
ask him,
If you believe in destiny,
ask it,
Ask them all to send healing
for surfer who sailed the seas,
trying to find peace,
but never found it.
Ask for gentle waves and siren songs,
the mistral breeze to bring him home.
I’ll be waiting,
forever,
without a cease.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

3 WEEK REPORT 👍🧿😊

Honestly, if we did not have that pathology report hanging over our heads, we would be now celebrating and would be almost completely back to normal. Surgery itself is now almost a "distant memory". There is no pain anywhere, incisions are pink tiny lines since crusting is gone, small bruising is gone above navel and big bruises on ribs are gone also. I have to say that surgeon did a great hob placing probes - somehow they were all in one line and that way muscles were not injured in different planes all over the belly. Maybe that technique made his recovery so fast, that and I am sure other things that were done inside that caused minimal trauma to the area.

Regrading incontinence it is at this point really minimal. Thinnest Tena pad is more than enough. He uses 2 a day for sanitary reasons although one would be sufficient. I knew that future patients would like to know exact numbers , so I asked him to weight his pads yesterday. Morning 7:00 am to 4:30 pm was 9 grams , from 4:30 to midnight 11 grams. However there is some leaking during the night , 11 grams. It is tiny but interesting that it is there and he goes to pee at least once during the night and there is a LOT to pee, so maybe we should go easy on liquids before bedtime. All in all, we are more than happy with results since he is now only 2 weeks post catheter, and started Kegel exercises 10 days ago, and not a full program. He was advised to do basic ones and wait some more before starting core and pelvic floor exercises.

Regarding ED - I will be honest upfront and say that you will have to read between lines since yes, I am somewhat uncomfortable talking about such intimate details *blush, I will just say that "it" is showing signs of life. I also want to say that even if it did not at all, my ONLY concern is my husband's longevity and happiness, I said it in my first post on this forum and I stand by it firmly. I would rather have him by my side and see his smile first thing in the morning than having anything else in this whole world. ED is not even on a list of "important things" in a grand scale of relationship and love after 40 years of being together. 🥰💖 What I am concerned about is penile rehabilitation in a sense that "it" stays healthy and does not atrophy since it can cause functional problems with urination, or similar. So yes, he will stay on Cialis and start "exercising it" per doctors instructions in a week or so.

He is working full time and is walking a lot and can not wait to be able to do some more sporty things. His energy level is normal, so I hope his blood count is back to normal too. I will make sure he goes to a walk-in-lab and check his basic metabolic panel and blood count next week and I am tempted to do PSA 😬 too, although it is super early and will not be correct - I just needed to see it going down - If I am crazy with that idea - please let me know 😬.

As always - LOVE TO ALLLL !!! 💖💖💖
Hope that you are having successful progress in any kind of treatments that you are having right now 🍀🍀🍀👍😊.

REPLY

I am so happy for you both! Wonderful, too, that there is almost a discernible ray of sunshine with a side of optimism in your post today! Congratulations to you two on the wonderful progress that is the result of your months of study, efforts and frustration.

Bill

REPLY

Thank you sth88 for sharing your " journey " with us. Your blogs should be a must read for anyone finding themselves in the PC snare and beginning the path to health and survival.
Best of luck. We live with hope!

REPLY

so maybe we should go easy on liquids before bedtime

good plan stop drinking at least substantially two to three hours before you go to sleep

I appreciate you sharing your husband's progress
I will be thinking about you hoth

Ed

REPLY
Profile picture for surftohealth88 @surftohealth88

3 WEEK REPORT 👍🧿😊

Honestly, if we did not have that pathology report hanging over our heads, we would be now celebrating and would be almost completely back to normal. Surgery itself is now almost a "distant memory". There is no pain anywhere, incisions are pink tiny lines since crusting is gone, small bruising is gone above navel and big bruises on ribs are gone also. I have to say that surgeon did a great hob placing probes - somehow they were all in one line and that way muscles were not injured in different planes all over the belly. Maybe that technique made his recovery so fast, that and I am sure other things that were done inside that caused minimal trauma to the area.

Regrading incontinence it is at this point really minimal. Thinnest Tena pad is more than enough. He uses 2 a day for sanitary reasons although one would be sufficient. I knew that future patients would like to know exact numbers , so I asked him to weight his pads yesterday. Morning 7:00 am to 4:30 pm was 9 grams , from 4:30 to midnight 11 grams. However there is some leaking during the night , 11 grams. It is tiny but interesting that it is there and he goes to pee at least once during the night and there is a LOT to pee, so maybe we should go easy on liquids before bedtime. All in all, we are more than happy with results since he is now only 2 weeks post catheter, and started Kegel exercises 10 days ago, and not a full program. He was advised to do basic ones and wait some more before starting core and pelvic floor exercises.

Regarding ED - I will be honest upfront and say that you will have to read between lines since yes, I am somewhat uncomfortable talking about such intimate details *blush, I will just say that "it" is showing signs of life. I also want to say that even if it did not at all, my ONLY concern is my husband's longevity and happiness, I said it in my first post on this forum and I stand by it firmly. I would rather have him by my side and see his smile first thing in the morning than having anything else in this whole world. ED is not even on a list of "important things" in a grand scale of relationship and love after 40 years of being together. 🥰💖 What I am concerned about is penile rehabilitation in a sense that "it" stays healthy and does not atrophy since it can cause functional problems with urination, or similar. So yes, he will stay on Cialis and start "exercising it" per doctors instructions in a week or so.

He is working full time and is walking a lot and can not wait to be able to do some more sporty things. His energy level is normal, so I hope his blood count is back to normal too. I will make sure he goes to a walk-in-lab and check his basic metabolic panel and blood count next week and I am tempted to do PSA 😬 too, although it is super early and will not be correct - I just needed to see it going down - If I am crazy with that idea - please let me know 😬.

As always - LOVE TO ALLLL !!! 💖💖💖
Hope that you are having successful progress in any kind of treatments that you are having right now 🍀🍀🍀👍😊.

Jump to this post

Your positive attitude must be a big help to your husband’s healing. I’m sure that he will be able to weather whatever the future brings with you at his side 🥰

REPLY
Profile picture for surftohealth88 @surftohealth88

3 WEEK REPORT 👍🧿😊

Honestly, if we did not have that pathology report hanging over our heads, we would be now celebrating and would be almost completely back to normal. Surgery itself is now almost a "distant memory". There is no pain anywhere, incisions are pink tiny lines since crusting is gone, small bruising is gone above navel and big bruises on ribs are gone also. I have to say that surgeon did a great hob placing probes - somehow they were all in one line and that way muscles were not injured in different planes all over the belly. Maybe that technique made his recovery so fast, that and I am sure other things that were done inside that caused minimal trauma to the area.

Regrading incontinence it is at this point really minimal. Thinnest Tena pad is more than enough. He uses 2 a day for sanitary reasons although one would be sufficient. I knew that future patients would like to know exact numbers , so I asked him to weight his pads yesterday. Morning 7:00 am to 4:30 pm was 9 grams , from 4:30 to midnight 11 grams. However there is some leaking during the night , 11 grams. It is tiny but interesting that it is there and he goes to pee at least once during the night and there is a LOT to pee, so maybe we should go easy on liquids before bedtime. All in all, we are more than happy with results since he is now only 2 weeks post catheter, and started Kegel exercises 10 days ago, and not a full program. He was advised to do basic ones and wait some more before starting core and pelvic floor exercises.

Regarding ED - I will be honest upfront and say that you will have to read between lines since yes, I am somewhat uncomfortable talking about such intimate details *blush, I will just say that "it" is showing signs of life. I also want to say that even if it did not at all, my ONLY concern is my husband's longevity and happiness, I said it in my first post on this forum and I stand by it firmly. I would rather have him by my side and see his smile first thing in the morning than having anything else in this whole world. ED is not even on a list of "important things" in a grand scale of relationship and love after 40 years of being together. 🥰💖 What I am concerned about is penile rehabilitation in a sense that "it" stays healthy and does not atrophy since it can cause functional problems with urination, or similar. So yes, he will stay on Cialis and start "exercising it" per doctors instructions in a week or so.

He is working full time and is walking a lot and can not wait to be able to do some more sporty things. His energy level is normal, so I hope his blood count is back to normal too. I will make sure he goes to a walk-in-lab and check his basic metabolic panel and blood count next week and I am tempted to do PSA 😬 too, although it is super early and will not be correct - I just needed to see it going down - If I am crazy with that idea - please let me know 😬.

As always - LOVE TO ALLLL !!! 💖💖💖
Hope that you are having successful progress in any kind of treatments that you are having right now 🍀🍀🍀👍😊.

Jump to this post

I love good reports like this one! Sending good vibes your way!

REPLY
Profile picture for surftohealth88 @surftohealth88

3 WEEK REPORT 👍🧿😊

Honestly, if we did not have that pathology report hanging over our heads, we would be now celebrating and would be almost completely back to normal. Surgery itself is now almost a "distant memory". There is no pain anywhere, incisions are pink tiny lines since crusting is gone, small bruising is gone above navel and big bruises on ribs are gone also. I have to say that surgeon did a great hob placing probes - somehow they were all in one line and that way muscles were not injured in different planes all over the belly. Maybe that technique made his recovery so fast, that and I am sure other things that were done inside that caused minimal trauma to the area.

Regrading incontinence it is at this point really minimal. Thinnest Tena pad is more than enough. He uses 2 a day for sanitary reasons although one would be sufficient. I knew that future patients would like to know exact numbers , so I asked him to weight his pads yesterday. Morning 7:00 am to 4:30 pm was 9 grams , from 4:30 to midnight 11 grams. However there is some leaking during the night , 11 grams. It is tiny but interesting that it is there and he goes to pee at least once during the night and there is a LOT to pee, so maybe we should go easy on liquids before bedtime. All in all, we are more than happy with results since he is now only 2 weeks post catheter, and started Kegel exercises 10 days ago, and not a full program. He was advised to do basic ones and wait some more before starting core and pelvic floor exercises.

Regarding ED - I will be honest upfront and say that you will have to read between lines since yes, I am somewhat uncomfortable talking about such intimate details *blush, I will just say that "it" is showing signs of life. I also want to say that even if it did not at all, my ONLY concern is my husband's longevity and happiness, I said it in my first post on this forum and I stand by it firmly. I would rather have him by my side and see his smile first thing in the morning than having anything else in this whole world. ED is not even on a list of "important things" in a grand scale of relationship and love after 40 years of being together. 🥰💖 What I am concerned about is penile rehabilitation in a sense that "it" stays healthy and does not atrophy since it can cause functional problems with urination, or similar. So yes, he will stay on Cialis and start "exercising it" per doctors instructions in a week or so.

He is working full time and is walking a lot and can not wait to be able to do some more sporty things. His energy level is normal, so I hope his blood count is back to normal too. I will make sure he goes to a walk-in-lab and check his basic metabolic panel and blood count next week and I am tempted to do PSA 😬 too, although it is super early and will not be correct - I just needed to see it going down - If I am crazy with that idea - please let me know 😬.

As always - LOVE TO ALLLL !!! 💖💖💖
Hope that you are having successful progress in any kind of treatments that you are having right now 🍀🍀🍀👍😊.

Jump to this post

It was suggested by my second opinion doc to wait 6 months for the first PSA test. I had one scheduled the 17th so will get it to see what's up. Over treatment is a thing.

REPLY
Profile picture for chippydoo @chippydoo

It was suggested by my second opinion doc to wait 6 months for the first PSA test. I had one scheduled the 17th so will get it to see what's up. Over treatment is a thing.

Jump to this post

Hi Chippy : )) ! Thanks for your input - did you have RT or RP ? It is standard protocol to have the first PSA test done about 8 weeks post radical prostatectomy .

REPLY
Profile picture for surftohealth88 @surftohealth88

3 WEEK REPORT 👍🧿😊

Honestly, if we did not have that pathology report hanging over our heads, we would be now celebrating and would be almost completely back to normal. Surgery itself is now almost a "distant memory". There is no pain anywhere, incisions are pink tiny lines since crusting is gone, small bruising is gone above navel and big bruises on ribs are gone also. I have to say that surgeon did a great hob placing probes - somehow they were all in one line and that way muscles were not injured in different planes all over the belly. Maybe that technique made his recovery so fast, that and I am sure other things that were done inside that caused minimal trauma to the area.

Regrading incontinence it is at this point really minimal. Thinnest Tena pad is more than enough. He uses 2 a day for sanitary reasons although one would be sufficient. I knew that future patients would like to know exact numbers , so I asked him to weight his pads yesterday. Morning 7:00 am to 4:30 pm was 9 grams , from 4:30 to midnight 11 grams. However there is some leaking during the night , 11 grams. It is tiny but interesting that it is there and he goes to pee at least once during the night and there is a LOT to pee, so maybe we should go easy on liquids before bedtime. All in all, we are more than happy with results since he is now only 2 weeks post catheter, and started Kegel exercises 10 days ago, and not a full program. He was advised to do basic ones and wait some more before starting core and pelvic floor exercises.

Regarding ED - I will be honest upfront and say that you will have to read between lines since yes, I am somewhat uncomfortable talking about such intimate details *blush, I will just say that "it" is showing signs of life. I also want to say that even if it did not at all, my ONLY concern is my husband's longevity and happiness, I said it in my first post on this forum and I stand by it firmly. I would rather have him by my side and see his smile first thing in the morning than having anything else in this whole world. ED is not even on a list of "important things" in a grand scale of relationship and love after 40 years of being together. 🥰💖 What I am concerned about is penile rehabilitation in a sense that "it" stays healthy and does not atrophy since it can cause functional problems with urination, or similar. So yes, he will stay on Cialis and start "exercising it" per doctors instructions in a week or so.

He is working full time and is walking a lot and can not wait to be able to do some more sporty things. His energy level is normal, so I hope his blood count is back to normal too. I will make sure he goes to a walk-in-lab and check his basic metabolic panel and blood count next week and I am tempted to do PSA 😬 too, although it is super early and will not be correct - I just needed to see it going down - If I am crazy with that idea - please let me know 😬.

As always - LOVE TO ALLLL !!! 💖💖💖
Hope that you are having successful progress in any kind of treatments that you are having right now 🍀🍀🍀👍😊.

Jump to this post

Congrats on your three-week report. This is my eight-week report so I very much understand your concern and optimism. Be patient and make sure he is getting a lot of rest. Last February during my annual physical my primary physician noticed that my PSA reading had jumped from 1.4 (past 5 years) to 4.6. For me being a 70 year-old active man, 4.6 PSA was considered "normal" My doc said if this had been my 1st PSA test in 5 years, he would not have done anything other than active surveillance. What concerned him was the sudden rise from 1.4 to 4.6 in less than one year. Normally PSA rises slowly. That is why he ordered MRI and biopsy which confirmed two 1-cm cancerous growth but they appeared to be confined to the prostate. Eight weeks out from surgery, my PSA has dropped to .04, virtually undetectable. Yes first month after surgery I was using 3-4 tena pads per day. Now I'm down to 1 pad and fully able to urinate and empty bladder. I have a few ED issues but oncologist says be patient (3-9 months) and he expects full recovery since he did nerve sparing procedure. This surgery is hard on your body so your husband should be patient and allow the healing to happen slowly from the inside out. See the pathology report as a road map to recovery. After 8 weeks I'm walking a few miles every day or so and getting more energy but just listen to my body and take an afternoon when I'm tired (which I never used to do). . Also drink lot's of water....Best wishes on a quick recovery! Rick

REPLY
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