Replies to Faith – I am 78 years old and I was finally diagnosed correctly two years ago….

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Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 8 11:05am | Replies (20)

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@dbruskin

Faith - I am 78 years old and I was finally diagnosed correctly two years ago. But even with Camzyos and the other drugs I take I am not symptom free. I get out of breath easily if I walk too fast or if I walk uphill. I’ve realized I need to accept the way I am. But it’s certainly better than before
Hope the drug helps you

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Replies to "Faith - I am 78 years old and I was finally diagnosed correctly two years ago...."

Faith | @afaith | Sep 4 11:20am

I'm sorry to hear the Camzyos and other meds aren't helping you more. Great you finally got a correct diagnosis ! That matters so much. I hope that the Camzyos's helped you somewhat. And also, thank you for saying that, it might be good for me to know what the realistic ballpark is for treament with this?

I hear you, about acceptance. So good you are there with that acceptance for the way you are.

Accepting ourselves the way we are , or accepting life as it is, is sometimes the most freeing thing we can do. I think I'm in the process with that, moving towards acceptance, or in acceptance, and sometimes out of acceptance, just about having HCM, and the SOB, and the (for me) complicated steps to understanding and making treatment choices, & the pace, ....seems, s...l....o....w.

I guess it takes most of us awhile to get the correct diagnosis, that was true for me too.

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