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Profile picture for Ray Kemble @ray666

We're going to start with what the doctor advises: 1 week of the Vidaza, then 3 weeks off, with 2 blood draws per week to monitor how things are going. My partner is prepared, however, to call it quits with the Vidaza if, in her estimation, she continues to go downhill. The way she's feeling right now (in spirit), she wants to get some sort of therapy underway, although she'll not be shy about telling her doctor let's stop this or change this or try something else. We had a phone chat earlier with the doctor's nurse; the nurse is very forthcoming––pulls no punches––which my partner and I both appreciate. ––Ray

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Replies to "We're going to start with what the doctor advises: 1 week of the Vidaza, then 3..."

That’s great… Moms doctor was very forthcoming with her about what treatment “could” look like… both ends of spectrum…. Mom immediately knew she didn’t want any of it…

The doctor’s only question was if she was being pressured by family opinions either way…. She politely told him… “it’s my decision only” and he didn’t try to sway her whatsoever.