I can definitely relate to your current predicament… I wanted to learn as much as possible as quick as possible and this site was very helpful…

I did have a reference point. The mother of a friend was diagnosed right before with my mom, but diagnosed at CML.. One treatment put her in hospital and after a week she stopped treatment and was deceased a week later…. That got our attention that things could go south rather quickly and my mom knew she wanted not part of the treatment route…. That was a reality check about quality vs quantity..

Remember the other person had converted from MDS to AML… the Vidaza was the same treatment along with an oral pill of which I never learned the name.

Sometimes you just have to let the affected person go with what’s in their gut feeling…