Hi, an update on my situation... my doc sent me to a nutritionist to test for food sensitivities. So I’ve cut out gluten and dairy. I noticed a big difference cutting out out gluten... the face swelling/neck swelling has gone away. My tongue is about once a month but seems to be somewhat better after cutting out some of the major food allergy. I am waiting for blood results on food sensitivities... so I’m curious what that comes back as. I’m still on Zyrtec and Prilosec. My doc mentioned singular but haven’t dared to start it. My tongue gets ridged like yours @johannahansen and my doc said that was swollen but normal ....which I know isn’t true cause my tongue isn’t always like that! I’ve seen multiple specialists and they have no answers for me... lots of blood work and a CT scan. Nothing. I try to stay calm now when I get the tongue swelling... I try to relax my jaw and take deep breaths and not focus on it. It seems to help some. I’m
Sorry you’re going through this ... it is really frustrating and scary.