Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Justin McClanahan, Moderator | @JustinMcClanahan | Sep 2 12:54pm

In reply to @bigjohnscho "Is Capsacare cream any good" + (show)

Hello @bigjohnscho,

I combined your new discussion on Capsacare cream with an existing discussions of yours titled:

"Has anyone found a treatment that helps with peripheral neuropathy"
- https://connect.mayoclinic.org/discussion/has-anyone-found-a-treatment-that-helps-with-peripheral-neuropathy

Here, members you have met can see your new question on capsacare cream and can weigh in their experiences of capsacare cream.

hoch | @hoch | Sep 2 1:35pm

In reply to @willgranger1127 "Hoch, Thanks for the tip on Powerade. I'll go back to Gatorade. It doesn't have any..." + (show)

I don't know if Gatorade is any better; in fact, it may be worse. I don't like the ingredient list on either one. Just do some research. I've been using Redman Re-lyte and Paleovalley Essential Electrolytes.

William | @willgranger1127 | Sep 2 2:14pm

In reply to @hoch "I don't know if Gatorade is any better; in fact, it may be worse. I don't..." + (show)

Oh my! I’ll get what you are taking. Nothing like having someone else recommend a good product. Thank you!

he9 | @he9 | Sep 2 3:18pm

I have been in remission from ST II Ovarian Cancer since finishing chemotherapy, I suppose. However no scan has ever detected cancer, since one ovary and one fallopian tube, which were removed during my hysterectomy, were found to be affected only subsequently by pathology. Since the time my chemotherapy was completed, I experience PN in both feet and hands, but hands only minimally. The neurologist treating me has recommended Lyrica (since gabapentin in me induced sleep) and Duloxetine. My dose is 30 mg of Duloxetine and 50 mg of Lyrica each am and bedtime plus two 50 mg capsules of Lyrica both mid morning and mid afternoon. My discomfort is well-managed on that regimen. I often have to be reminded to take the midday doses by the developing pain in my toes.

kpkxrn | @kpkxrn | Sep 2 6:14pm

In reply to @cit10jetjockey "Save your money. There’s no treatment for PN, and there will never be any. The nerves..." + (show)

Sad but true. 8 years post By Pass of the Femoral Artery I am between numb, fire and ice as well as the needles stuck willy nilly in my leg and ankle.

budgy | @budgy | Sep 3 7:22am

My neuropathy started as slight tingling in my toes on one foot 23 Years ago, now it affects my whole body including my hearing, speech, heart palpitations and my ability to swallow food 8 years ago I took part in a 12 month study involving immunoglobulin infusions of varying levels to no avail. I currently get pain relief and an anti depression boost by taking 200mcg of BUPRENORPHEN 3 times a day (for the last 4 years)

bigjohnscho | @bigjohnscho | Sep 4 12:23pm

Can I ask a naive question. I look at all these so called experts all very qualified endorsing all types of treatments for peripheral neuropathy. Many of them claiming totally different root causes. What chance is thereof finding a cure when after years of trying they still don’t know the cause. It seems unbelievable

mrmacabre | @mrmacabre | Sep 4 1:33pm

In reply to @bigjohnscho "Can I ask a naive question. I look at all these so called experts all very..." + (show)

All I know is that a cure will never happen in my lifetime. I'm not even sure how many years I've got left.

budgy | @budgy | Sep 4 5:22pm

You have my sympathy my friend. Give BUPRENORPHEN a try, over 23 years I’ve tried just about everything else. It’s no cure but it gives me relief and a full nights sleep.