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Camzyos treatment location / expertise?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 8 11:05am | Replies (20)
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Profile picture for dbruskin @dbruskin

Hi! Regarding where to get your follow up echos- your local cardiologist can do it after you’ve started Camzyos
I’ve been on Camzyos for two years. I no longer have an obstruction, but I still get out of breath at times. I also take Metoprolol and Isosorbide but I certainly am better off since starting Camzyos
Good luck
Deborah

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Replies to "Hi! Regarding where to get your follow up echos- your local cardiologist can do it after..."
Faith | @afaith | Sep 3 4:24pm

hi Deborah !
Thanks for that update of information, good to know that you've had your follow up with your local Cardiologist. So sometimes that is an option.

And great to hear you've been on it for 2 years and that it has helped clear the obstruction!

~ While I'll wish that some medication could make me symptom free, realistically also good to hear your situation, as maybe I need to remember that overall thing of we just can't know the path ahead. So camzyos may or may not work for me, and even it if does work, I also could be helped and still have SOB, and still need other medications.

It's all about we'll see.

All best wishes.

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