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Camzyos treatment location / expertise?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 8 11:05am | Replies (20)Comment receiving replies
The doctor that puts you on camzyos will be where your followups and echos will take place!
I was diagnosed at phoenix 7 hour drive for me to mayo and put on camzyos to get me stronger for surgery!
I asked about follow ups and exhos in my home town and was told i needed to do them at mayo in phoenix
Best of luck on your decisions
Replies to "The doctor that puts you on camzyos will be where your followups and echos will take..."
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Thanks for your message!
It's helpful to hear what you and others have done.
I was in touch with one treatment team, and they said a similar thing, re what you wrote. That where I get the camzyos from is where I'd need to go for at least the 4, 8, 12 week follow ups, and for the long term - as you mentioned for yourself.
Someone else I spoke to, in person, indicated that they thought that perhaps longer out follow ups might be able to done at a different location. But I'm guessing that depends entirely on the prescribing Doctor? ( and personal situation) ?
Good to know that camzyos can be used to get stronger for surgery. Great that you were able to use it that way. Hope you are very well now , and that surgery was a success for you.
All best wishes.