Connect
← Return to Has anyone stopped taking camzyos? I have stopped and feel very sick.
Discussion
Has anyone stopped taking camzyos? I have stopped and feel very sick.
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 1 6:39pm | Replies (48)Comment receiving replies
I had alcohol septal ablation surgery. They went through my femoral artery. The surgery was uncomfortable but manageable. I spent a few days in ICU after surgery. At times I'm still short of breath and have chest pain but the surgery was necessary.
Now I have stiff heart syndrome so my heart does not pump adequate blood supply to my brain and I experience eschemic strokes.
Replies to "I had alcohol septal ablation surgery. They went through my femoral artery. The surgery was uncomfortable..."
Connect
I am so sorry about the ablation outcome. I am hopeful we will all help doctors figure out this horrible disease. I had never heard of it until 7 years ago. I don’t recognize myself. Camzyos worked periodically. There were appointments where my doctor would marvel at its success only to have it all fall apart in the next appointment. I think everyone’s body is different. I was on it when it was a trial. The people in the commercials look so happy. None of them look like they have Hcm- very deceptive marketing. I pray for all of us. It will be ok.