Hi Debra, Thank you ! for your warmth and warm welcome.

I agree there's nothing like connecting with people who know what you're going through, and have insights on the path ahead.

I very much appreciate hearing what you have to say about a COE, and not just staying in my own back yard. And gettting the best care possible, thanks for advocating for that. I'm taking your advice to heart. 😉

I've been reading and learning as much as I can about O,HCM in the past few months, so have a start on understanding what HCM is. My main symptom is SOB on exertion, & an increase in long term murmur. My instinct is to gather up more info, and now that I've been told I'm a " good candidate" for Camzyos to think carefully about options. So that is my main question. Up to now, age 67, I've been mostly very healthy. That black box warning is certainly alarming. My local cardiologist who I know and trust, & who has an excellent local reputation had not suggested a COE. So, I'm exploring. And am also looking at the Lahey center in Burlington , MA.

Do you know if with Camzyos at a COE, do people always recieve the follow up echo's at their COE, or are those sometimes done remotely - closer to someones home if someone were traveling to a COE for their primary HCM treament? Or all echos, all follow up done in person at the COE's ?

I'd also like to understand more about what is the average path of progresion. Is HCM always progressive for individuals ? What is that expected arc of progression? and how does Camzyos change that ? If anyone has a resource to point me to on that, I'm interested.

Thank you !