Side effects three days post prostate radiation?

Posted by thitch @thitch, Mar 25 3:49pm

Just finish 35 rad. treatment for raising PSA. I'm also about two month into lupron therapy. Have had the hot flashes, joint pain, diarrhea but manageable. Three day after finishing rad. treatment I feel terrible. dizziness to the point of blackout, nausea, cramps, diarrhea, feels allot like food poisoning which it could be. Anyone have similar side effect post radiation.

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Profile picture for brian5837 @brian5837

So after radiation treatments are finished it's okay to ride bikes?

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Does anybody know or been told if after the gold seeds (fiducial markers) implantation and up to the radiation treatment sessions, if there is no SpacerOAR involved, it's okey to ride the bike? My gold seeds were implanted last We'd., March 26 and though Í asked my RO and care team, I was told that inmy case, spacer is not needed. (They told me the cases in which they, this particular cancer center, do spacer for their patients, so I have reason to believe them it's not needed in my case.) My SBRT treatments start on April 9.

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I would ask the RO. I recall different posts on the topic of when to ride and when not to ride before, during and immediately after RT that expressed differing opinions from their respective ROs. Best wishes for both the ADT and SBRT! Keep is updated.
Bill

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Profile picture for brian5837 @brian5837

Curious why you say you can't ride your bike? I had fiducial markers, rectal spacer, 4 weeks of Proton radiation a month ago and follow Orgovyx regimen for 6 months. Should I avoid exercise bikes in particular? Thanks.

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@brian5837
This information I am posting comes from my PCP, R/O at UFHPTI, and Mayo R/O.

When I was doing my PSA (every 3 months because of rising numbers) my PCP wanted me to stop bike riding a week prior to PSA test. I was doing 20-25 miles. This was because PCP stated bike riding can irritate the prostate. You will see some give statistics but everyone's body is different and the amount of irritation from the bike riding will be different for each person.

When I did my original counsulation at Mayo my R/Os went over my treatment plan. Part of that was giving me do's and dont's. It included to stop bike riding prior to Markers and Space/Oar being put in. Why irritation. Then no bike riding during treatments. Why? The amount of pressure put on prostate area can affect and even move the Space/Oar. Then when finished no riding until a month later to let prostate settle down.

I then had my second opinion done at UFHPTI. I go the same do's and don'ts. I was surprised at this one they even limited vitamins and supplements (I can do into why if you want). UFHPTI also said no bike riding prior, during, and right after. Same reason seat and pressure can put pressure on prosate irritating it even further but main issue is possiblity of moving the Space/Oar.

I don't want to give you medical advice but you asked about using a exercise bike after you finished a month ago. I was told to not bike ride for a month after and you are beyond a month now. But I would check for sure with your R/O. I see you use a exercise bike. What my R/O at UFHPTI said to me that these types of bikes with wide seats are much better as distribute the weight across a wider area that race bike seats.

I hope I answered your question. I loved to bike ride but like I said it was the only activity that I was asked to not do prior, during and right after.

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Profile picture for vircet @vircet

Does anybody know or been told if after the gold seeds (fiducial markers) implantation and up to the radiation treatment sessions, if there is no SpacerOAR involved, it's okey to ride the bike? My gold seeds were implanted last We'd., March 26 and though Í asked my RO and care team, I was told that inmy case, spacer is not needed. (They told me the cases in which they, this particular cancer center, do spacer for their patients, so I have reason to believe them it's not needed in my case.) My SBRT treatments start on April 9.

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@vircet
With the Space/Oar both my consultation with R/Os said no riding bike prior, during and right after.

You did not have Space/Oar. However, sitting on a bike seat (especially road bikes) puts a lot of pressure on your prostate. Per my R/Os and PCP you don't want to irritate your prostate when having PSA tests (possibly can raise the PSA level due to irritation). During your radiation treatments your prostate is going under tremendous damage, and you don't want to add more irritation to it. Then after you want your prostate to return to normal as quick as possible so not adding more irritation to it is what my R/Os were trying to educate me on.

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Profile picture for brian5837 @brian5837

So after radiation treatments are finished it's okay to ride bikes?

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@brian5837
Talk to your R/Os and or urologist.

Know that your prostate just went through radiation treatments and is in a state of high irritation and damage. My R/Os wanted me to wait a month to allow my prostate to lesson the irritation from the radiation to come down.

Just think about the little guy in there being bombarded with radiation damaging it big time. Probably having a really bad time from all the damage and irritatin and then you add a bike riding seat riding up into and putting pressur on it causing more irriation.

So my R/Os (had 2 different ones) and my PCP said wait several weeks. But go by what your R/Os and urologist give you for time frames. They may even recommend a shorter time or longer time depending on what side affects you had and are having.

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Profile picture for jc76 @jc76

@brian5837
This information I am posting comes from my PCP, R/O at UFHPTI, and Mayo R/O.

When I was doing my PSA (every 3 months because of rising numbers) my PCP wanted me to stop bike riding a week prior to PSA test. I was doing 20-25 miles. This was because PCP stated bike riding can irritate the prostate. You will see some give statistics but everyone's body is different and the amount of irritation from the bike riding will be different for each person.

When I did my original counsulation at Mayo my R/Os went over my treatment plan. Part of that was giving me do's and dont's. It included to stop bike riding prior to Markers and Space/Oar being put in. Why irritation. Then no bike riding during treatments. Why? The amount of pressure put on prostate area can affect and even move the Space/Oar. Then when finished no riding until a month later to let prostate settle down.

I then had my second opinion done at UFHPTI. I go the same do's and don'ts. I was surprised at this one they even limited vitamins and supplements (I can do into why if you want). UFHPTI also said no bike riding prior, during, and right after. Same reason seat and pressure can put pressure on prosate irritating it even further but main issue is possiblity of moving the Space/Oar.

I don't want to give you medical advice but you asked about using a exercise bike after you finished a month ago. I was told to not bike ride for a month after and you are beyond a month now. But I would check for sure with your R/O. I see you use a exercise bike. What my R/O at UFHPTI said to me that these types of bikes with wide seats are much better as distribute the weight across a wider area that race bike seats.

I hope I answered your question. I loved to bike ride but like I said it was the only activity that I was asked to not do prior, during and right after.

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Very helpful, thank you. I think I will just give everything more time to heal and for the inflammation to subside before I try the bike, even an exercise bike.

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My husband starts 33 weekdays of radiation and monthly Degarelix (aka Firmagon [someone had a bad sense of humor naming wise]) in 7 days. His prostatectomy 4 years ago didn't have clear margins, and we found out only last month it had spread to his seminal vesicles before removal. So, 4 years to reach 0.11 psa level. Generally they wait for 0.2 psa before radiation/hormone but the oncologist said his psa measurements probably understate the actual psa. I was a research scientist so get to do the background search on side effects and treatments. Side effects will be tough physically and emotionally, but one doesn't get to 69 years without migrating hardships. I won't mind hair loss because most of his covers his body; he will at least shed less. He is supposed to start the Kegel and other pelvic floor exercises to decrease possible urinary/fecal incontinence. He did increase calcium and D3, started Cialis (ED, increase of blood flow down there lessens possible radiation damage), and starts weight/resistance training next week to decrease potential bone and muscle loss. His current testosterone levels are the lower boundary of normal range, so hopefully any hot flashes or other manopause symptoms will be minor. We will see. I hope all of you have great support networks; cancer is evil. We will have more questions once treatment starts. https://www.nih.gov/news-events/nih-research-matters/comparing-side-effects-after-prostate-cancer-treatment

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Profile picture for brian5837 @brian5837

Very helpful, thank you. I think I will just give everything more time to heal and for the inflammation to subside before I try the bike, even an exercise bike.

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Would a recumbent exercise bike work? Most of that pressure is on the sitting bones and pelvis. I used to bike 140-160 mi/week, and padded bike shorts only do so much on standard bikes. Probably 8 years ago Lance Armstrong joined some of the Ride the Rockies segments and he gave a talk about his testicular cancer and Live Strong. Now he does mountain bike riding and racing. Interesting fellow, an odd mix of generosity with Live Strong. and being a jerk.

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