← Return to Life Expectancy with MAC, Nodular Bronchiectasis

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Profile picture for pacathy @pacathy

I know it's very concerning to read that and am sorry you're dealing with it. Just remember, If you don't have positive cultures, it's possible you don't have MAC. I was thought to have MAC based on CT's due to nodules, trees-in-bud, bronchiectasis, etc. To everyone's (local pulmonologist and Mayo's) surprise, my sputum cultures on bronchoscopy were negative for MAC-just normal flora.
The radiologist still said findings consistent with MAC on 2 CT's after that.
I know I'm lucky, but just wanted to share a bit of hope.
I do daily airway clearance for bronchiectasis to reduce risk for infection. .

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Replies to "I know it's very concerning to read that and am sorry you're dealing with it. Just..."

This may be a dumb question but since your sputum
Sample was negative for mac (mine was too) and I was just diagnosed June 30th. How much do you cough up? Any color? Any small balls of anything. I wish we had something to compare to to look at so we would know if getting all the sputum emptied when doing airway clearings. I'm using 7% sodium without any bronchodilator (levalbuterol) at this time. Although I do read on several groups alot of people use levalbuterol first. 🤷‍♀️