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Our Dystonial DBS journey

Parkinson's Disease | Last Active: Sep 8 2:07pm | Replies (10)

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Update Kari this week 8/28th and 8/29th on battery turn on Wow what a process thoroughly called it Transformation of miracles

Thursday 8/28th - testing 2 hours this day she had taken meds for that day so they can tell when the battery is turned on what “bad” side effects came with it like twitching, numbness in face, pulling on skin, hand movements and involuntary muscle or facial etc movement anything that makes it worse) are included with the battery packs and meds - there are two packs one on each side of her chest oh 4 contacts 0-1-2-3 and had to test each contact with the electrical circuit voltage - RN was great as she kept telling Kari when she was increasing voltage and Kari would tell her things she could not see physically like emotions, sensations etc. You go through each contact each side and Kari was semi wiped out after going through those interactions this day.
29th - same set up but only took her non Parkinson meds - now RN wanted to see the “Good side effects- improved of foot stop turning in, voice crackle, quicker responses, tapping foot and finger faster etc- just opposite of day before and WOW so many improvements so many more ah ha moments so many tears of joy and excitement so far we are on morning after the packs are on and Kari slept well via night from what I can tell.
Prayers, hope a d having God in your corner is good! Like Garth Brooks song God answered unanswered prayers so true -
God is Great!!!
Will keep posted

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Replies to "Update Kari this week 8/28th and 8/29th on battery turn on Wow what a process thoroughly..."

@coachwock - glad to hear about the improvements, ah-ha moments and tears of joy and excitement so far in Kari's DBS journey.

I also wanted @hopeful33250 @sillyblone @janna2 @cartercd @angels81 to meet you and hear about Kari's story. They may have input for you on the journey.

What happened with Kari today @coachw?

Hello @coachwock,

How great to get your update about Kari's progress. I look forward to hearing about her continued progress as she adjusts to this new support for her PD symptoms. Is she still feeling weighted from the hardware or is she getting used to this new equipment?