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Has anyone dealt with the decision to stop Anastrozole due to joint pa
Breast Cancer | Last Active: Sep 4, 2025 | Replies (29)Comment receiving replies
My oncologists keep leaving and I’m “in between” oncologists right now. I posted all my side effects to my doctors message board trying to get someone to respond. A nurse finally got back to me and said someone would message me back.
I had invasive lobular breast cancer diagnosed in July 2024. I had a mastectomy in August 2024 and then radiation (33 visits) I chatted with the radiologist who showed me the cancer showed up in mammograms in 2017, 2019, 2022 (late mammogram due to Covid) and found in 2024. It had spread to 2 sentinel lymph nodes.
My oncologists that keep leaving are contractors working for my provider. They don’t even seem to want to talk to me.
This is really causing me some mental anguish.
Replies to "My oncologists keep leaving and I’m “in between” oncologists right now. I posted all my side..."
Hi cat168, I was diagnosed with invasive lobular breast cancer in June 2024. I had mastectomy, chemo, radiation and now Letrozole with Verzenio. Really rough side effects, so I just stopped Letrozole, waited a month and now on Exemestane. Trigger fingers and Carpal Tunnel Syndrome are the side effects. I seem to tolerate Exemestane better than Letrozole and taking every other day helps. Once I add in the Verzenio, the side effects were worsened with Letrozole and I haven't added it back in yet. For now, I'm going to make an appt. with Orthopedist to see how to help. I'm determined to stay on the aromatase inhibitors for now and again Exemestane is better for me.
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I am sorry this is happening to you. That sounds terribly frustrating! When your health is at stake, it is terrible when you can’t get the help you need. I hope you might find a caring doctor who can listen to your concerns and be of some help. SOON!
❤️