Leg Weakness and Mobility Issues

I do have osteoporosis. The bone therapy medication gives me pancreatitis. I have been taking for the last 2 months AlgaeCal. Maybe next scan will show no more deterioration. I hope Reclas is working for you.

I have been taking Reclas for 5 or more years and prior to that other medication to stave of the infusions for osteoporosis. It has slowed the progression down. I have degenerative disc disease with arthritis in my spine. I've had a couple of back surgeries with fusion of L4-L5. This left me with permanent L5 nerve damage to my left leg from my knee to my toes. I guess I am hoping the Gabapentin will help with pain. I messed up my kidneys in the 80's trying to stay away from pain killers for herniated disc's and was given 1200mg of ibuprofen for many years. I have been a solid 3 on the kidney scale according to my blood work for years. My pharmacist is more aware then my doctors of meds that might do more damage. He has red flagged for me in the past. As always thanks for lending an ear and more.

The Fusion of L4-L5 is this with metal in your back? That is a very difficult process to heal.
I had non invasive L4-L5, L5-S1 and piriformis release. I had nerve damage that left me legs useless and very painful even when laying down. After surgery the painful current movement in my toes went away but the nerve damage has been a real slow progress to get some kind of QOL back. There are yoga stretches on youtube that make a significant difference each day you do them for hip and legs. It helps the whole body. Hydration with minerals every morning. So many natural things I am discovering make a little difference each day. I am really imbalanced and that starts in the brain. There is a heaviness on the left side of the brain. I must use a cane so I don't fall. I am trying to concur that with the yoga exercises. Have a good day. Don't give up.

HI! I had to comment as I am 78 but very same symptoms. . I have had RA for almost 40 years which with steroid daily use can cause this muscle wasting over time, but even my new sensations and abilities were odd. My hemotologist suggested having a neuro muscular over view at UCONN and I did. then they suggested a DNA testing - and THAT is what I want you to bring up . AFTER a biopsy (in gut - and all 6 gluts are torn) it turned out I have ADULT ONSET MUSCULAR DYSTROPHY!!! masked byt the RA and steroid symptom ! at 78!!!!
now there is NOTHING more they can do for MD ` but good to understand new,, conditions. Good luck - hope it is NOT but few might consider it. yes it is genetic and NO ONE in my family has ever had it. I have ONE mutated gene - rae but it is enough....mosaic too. check it out! note - all my 3 grown kids have a 50% change of having this too, but until Medicare they will not check, and then my 8 grands could>?!

this comment is about bad mobility for Gabro????? email didn;t show up in comment??? odd

Hi again.. YES metal titanium cages at L4-L5, L5-S1. Prior I had a laminactomy at L4-L-5 that left me leg pain worse 2 years later I had the fusion. They did the fusion surgery from the front.

What is your treatment plan? Did you have a brain scan?

I have a similar condition although not as serious as yours by any means. The way you describe back issues, leg weakness, climbing stairs all resonate with me. I didn’t hear you say that you had tried acupuncture. If you do, research before you decide. Then make sure you are referred to an experienced practitioner . I have had complex regional pain syndrome in my left ankle which the physiatrist was not sure I would be able to walk again, but I was determined. Treatment necessitated special physiotherapy, aqua exercise, and acupuncture and finally treadmill and longer walks outside. Finally I am able to walk again. I credit persistence, and also found the aqua puncture especially helpful, not painful either. My foot felt lighter after each session. Exercise can set one on the right track but it has to be tailored to your specific situation and beginning very very slowly in my case anyway. Wish you good luck solving your issues.

They will go back in and remove the 4 screws. New territory and not sure of outcome. What I do know is slowly but surely losing the ability to walk at all. There are specialized tests prior to then surgery that were skipped. So the nickel in the screws continue to poison me.

I hope you get some answers. I can truly understand your frustration. I began to have excruciating pain after completing chemotherapy in 2005. I was diagnosed with fibromyalgia, chronic myofascial pain and chronic fatigue. I was unable to return to work as an RN and was awarded disability. Later, I was diagnosed with chemotherapy induced peripheral neuropathy. Three EMG’s confirmed it. But that didn’t explain all of the symptoms that have developed over the years.
The thing that struck me about your post was your positive ANA of 1:80 and speckled pattern. I had the same results. The rheumatologist didn’t think that the ANA was anything to worry about.
I may ask him to repeat the test out of curiosity and frustration.
My sister has Shogren syndrome and my daughter has psoriatic arthritis. I don’t want to have an autoimmune disease, but I would like some answers.
I don’t mean to sound like a know it all, but having been a nurse for 30 years. I feel like I know my body and what some symptoms might mean.
That can be a good thing and a bad thing. However, I think I’ve learned over the years that it’s ok to get second opinions and ask doctors questions, etc.
I apologize for talking so much about myself. Your story just sounded so familiar.
I pray you will get better and your symptoms will improve.