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Inflammatory bowel disease (IBD) support group: Let’s connect
Inflammatory Bowel Disease (IBD) | Last Active: 4 days ago | Replies (55)Comment receiving replies
For some reason Dr cannot tell me what is wrong. I have diarrhea numerous times on a daily basis. Cant go anywhere that is far from a restroom. I've had numerous tests, stool, breath tests, bloodwork, colonoscopy and endoscopy. Tried metameucil and pro and prebiotics. My calprotectin was slightly elevated but doc didn't think that was causing issue. I've tried non dairy diet, bland diet nothing changed. Been having this issue since Oct 2024. Doc now wants me to try Colestipol which was $165 not sustainable for me as I'm retired on a fixed income also the side effects of that are kind of scary. Right now if I want to go on a day trip with husband I take an Imodium in the morning which helps but doc did say this should not be a long term answer.
Replies to "For some reason Dr cannot tell me what is wrong. I have diarrhea numerous times on..."
@valarino
Has your doctor suggested a pill camera? After a small bowel obstruction and numerous tests and several years of problems, my doctor said a pill camera would pinpoint a diagnosis. It showed Crohn’s Disease of the mid and distal jejunum which is hard to reach with a scope. It wasn’t fun swallowing the pill camera, but it was worth it to reach a diagnosis.
@valarino - just wondering if you've seen any resolution with the diarrhea you were experiencing?
@valarino I went through that for years. I didn't dare to go out of the house because I couldn't control my bowels. I had violent cramping that made me feel nauseous and that I might pass out. I tried Metamucil. I went to a gastro dr., he ran some tests, said there was no blockage and I should take gas pills and don't take Metamucil. Shortly after I ended up in the hospital with a small bowel obstruction. Two years later I was back with another obstruction. The surgeon came to visit me in the hospital and told me the next time I came in I would be facing surgery. The nurses in the hospital talked to me about a lo fiber diet. I followed it to the letter. losing weight all the while. ( not a bad thing). Went to a different Gastro dr. He told me to take Miralax every day explained that diarrhea is part of constipation. He said it doesn't matter what type of diet I am on It will come back. I DON'T WANT SURGERY. I stick to my lo fiber diet, take 1 teaspoon of Miralax every single night and I have been living the most normal life I have lived in years. Yes I am always waiting for the next shoe to fall and notice that any stress sets me off again but only for a day. One day at a time.
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@valarino - that sounds frustrating that the doctor cannot tell you what is wrong and you have diarrhea numerous times on a daily basis. Sounds challenging to manage, especially with going out of the house.
What do you see as the diagnostic possibilities for yourself from any research you've done? Are you wondering if you might have an inflammatory bowel disease such as Crohn's disease or ulcerative colitis?