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Help with post surgery symptoms baffling docs.

Esophageal Cancer | Last Active: Sep 7 5:10pm | Replies (15)

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Ok. Would be interested in your story. Thx and enjoy the cruise

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Replies to "Ok. Would be interested in your story. Thx and enjoy the cruise"

Here's a summary I sent to a fellow caregiver who was asking questions about her father... so I could better understand the counseling he could use. So I briefly told her my story:

Give me some background on his journey to date... I'm sorta like a doctor now... I need the basics to know if what he's seeing is normal. For instance... here's my Reader's Digest summary:

Male, 61 at dx in March 2020
Stage 3 dx, T3N1M0. Adenocarcinoma tumor at GEJ
J tube installed ASAP, could not swallow a teaspoon of water
CROSS protocol of five weekly Carboplatin and Taxol chemo infusions started 4 weeks later, with 23 photon radiation treatments.
Off J tube for last 6 weeks leading g to esophagectomy, as swallowing improved.
Minimally invasive Ivor Lewis Esophagectomy on 7/29/2020.
One year of Opdivo started in October 2020. Completed Sept 2021.
Monitored by 6 month scans for first 3 years post-op, along with Signatera Blood draws for ctDNA.
Just had my last CT scan with contrast on August 1st. Oncologist said he's done following me.
Only post-op issue... tight anastomosis... could not swallow well, even at 5 months post-op... still dropping weight. Turns out I needed to be stretched. 4 stretches at one per month took me from 5 mm to 16 mm.
Today I eat fairly normally... I sleep flat again, head on one pillow, on either side.
But everybody's post-op journey is different... YMMV as they say. But it is especially depressing early on. That's what I'm here for, so you call me and we'll discuss.

Ok... let me have it about dad.