Has anyone had a rems bone scan or tbs bone scan?

Posted by jimr33 @jimr33, Nov 11, 2024

I have poor dexa bone scan results, but have heard that rems scans and tbs (trabecular) bone scores can give you a better overall bone health picture. But both, especially rems are pretty new and I wonder if anyone has been able to have one and if their insurance accepts?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for hungrybirder @hungrybirder

That’s an interesting thought. My two scans were vastly different and having had 5 annual dexa scans (same hospital, same machine) one with TBS, I believe the unreliable one was the REMS. I’ll know more when this year’s scan takes place.

Jump to this post

I trust my REMS scan more, since it measures bone quality and microarchitecture as well as density. Plus it’s safer ( no radiation)
DEXA is useful, but its ties to the pharma system make me cautious.

I’ll be interested to hear how your next scan turns out.

REPLY
Profile picture for marynh @marynh

I really wanted the REMS to be correct as it was such a good report. However, that was why I went to a different facility in April 2025 to include the TBS score with my Dexa Scan. I was very interested to see which way the TBS would report, but sadly, also indicated degraded architecture.

Jump to this post

Well, I hope it all works out for you — thank you for sharing your experience.
Keep lifting weights stay strong

REPLY
Profile picture for marynh @marynh

I had my REMS done one year ago in Oregon through Osteostrong. It was very confusing because it showed I was normal in my spine and osteopenia in my hips. I have 6 consecutive years of Dexa Scans showing Osteoporosis in my spine and osteopenia in my hips. I am stable with my scores during this time. I had another Dexa Scan and (new to me) a TBS score done April 2025. Same Dexa Scan scores, but the TBS showed "1.185, which is consistent with degraded architecture". This information led me to work with an Endocrinologist who has been a positive experience to work with. I feel like I have someone with the knowledge and supports me to address the osteoporosis.
I do not consider the REMS to be valid in my situation and do not rely on this.

Jump to this post

@marynh My TBS scores is very similar to yours. I'm curious if you've been able to improve your TBS scores with any medication? Have you ever fractured? My TBS came as a big surprise since I though I only had osteopenia on the verge of osteoporosis.

REPLY
Profile picture for soggybones @soggybones

@marynh My TBS scores is very similar to yours. I'm curious if you've been able to improve your TBS scores with any medication? Have you ever fractured? My TBS came as a big surprise since I though I only had osteopenia on the verge of osteoporosis.

Jump to this post

@soggybones It was the TBS score that prompted me to see an Endocrinologist and I am taking Alendronate daily. My next annual DEXA is May 2026.

REPLY
Profile picture for marynh @marynh

@soggybones It was the TBS score that prompted me to see an Endocrinologist and I am taking Alendronate daily. My next annual DEXA is May 2026.

Jump to this post

@marynh Sorry, I forgot to add that I have not fractured.

REPLY
Profile picture for marynh @marynh

@marynh Sorry, I forgot to add that I have not fractured.

Jump to this post

@marynh I'm glad you haven't fractured (neither have I...at least I don't think so). Best of luck with your next DEXA scan! I hope you see some improvement in your score!

REPLY

69YO active F. My DEXA scores were very low (severe osteoporosis) and my endo refused to include TBS scores with it. I then got a REMS test and I was mild osteopenia. I then got another DEXA from another provider with TBS. DEXA scores are still terrible (and comparable to the first, even though all factors — machine, technician, radiologist--were different from the original scan), but my TBS scores were very good. So no clue what to believe.

REPLY
Profile picture for dancinintherain @dancinintherain

69YO active F. My DEXA scores were very low (severe osteoporosis) and my endo refused to include TBS scores with it. I then got a REMS test and I was mild osteopenia. I then got another DEXA from another provider with TBS. DEXA scores are still terrible (and comparable to the first, even though all factors — machine, technician, radiologist--were different from the original scan), but my TBS scores were very good. So no clue what to believe.

Jump to this post

@dancinintherain My situation is different. My dexa was good but my Rems was bad. However, Rems includes the quality of your bone which improves your score. The quality of my bone was excellent. Which one to believe?

REPLY
Profile picture for dvargo @dvargo

@dancinintherain My situation is different. My dexa was good but my Rems was bad. However, Rems includes the quality of your bone which improves your score. The quality of my bone was excellent. Which one to believe?

Jump to this post

@dvargo Yeah, that is the question.

REPLY

When I was first diagnosed with severe OP, it was with a DXA only. I had trouble believing it because I am healthy and active. TBS was not offered and the technician had never heard of it.
I found a different place where I could have another DXA ( about 14 months later) and they also had the TBS add-on.
I desperately wanted the TBS to show that my bone quality was good, but alas, the second DXA showed even worse numbers and the TBS showed degraded bone.
After that, I made the decision to start Tymlos.

REPLY
Please sign in or register to post a reply.